Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi I recently asked the same question about just getting a liver transplant and my surgeon...

https://connect.mayoclinic.org/comment/952416/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

I was at Mass general last summer and they seem to employ the ‘let’s watch it...

https://connect.mayoclinic.org/comment/884361/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

Hi Teresa and tsabe2. At this time, I’m not able to provide any input to this...

https://connect.mayoclinic.org/comment/311781/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2020

Comment

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

Comment

Has your team discussed a liver directed therapy such as embolization? There are 3 types: bland,...

https://connect.mayoclinic.org/comment/1197420/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

Comment

I’m sure they will help! It might not be easy but you are going to a...

https://connect.mayoclinic.org/comment/1287245/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 4:25am

Comment

I have similar questions and would like to be added to your followers. I particularly want...

https://connect.mayoclinic.org/comment/775875/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

Comment

Thanks! A normal life! That's great! Your CT was negative with tumors in SI causing a...

https://connect.mayoclinic.org/comment/1260147/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 9:10am

Comment

I have “innumerable” (probably about 80) liver mets. Unknown origin. Diagnosed January 2020. Grade 2/3, well-differentiated....

https://connect.mayoclinic.org/comment/796179/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

Comment

If you are considered a candidate for surgery, my advice would be sooner than later. My...

https://connect.mayoclinic.org/comment/1065498/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

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