Neuroendocrine Tumors (NETs) Support Group

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Just here to share my story and hopefully help others. I was diagnosed at 57 with...

https://connect.mayoclinic.org/comment/1312320/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

Comment

After googling it, it means the tracer or dye they gave you was lighting up something...

https://connect.mayoclinic.org/comment/1301485/

Discussion: Focal SUV levels ga68pet/ct… what does that mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2025

Comment

@lanamarie: You must be feeling really overwhelmed by wanting a path to resolution of your health...

https://connect.mayoclinic.org/comment/1277660/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2025

Comment

Now I am back with some updates. Since Lutathera treatment in 2023, I had 15 fractions...

https://connect.mayoclinic.org/comment/1226272/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2025

Comment

I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...

https://connect.mayoclinic.org/comment/1217431/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2025

Comment

Hello All .My name is Ladonna I live in Az now so went to seed Doctor...

https://connect.mayoclinic.org/comment/1173048/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 13, 2024

Comment

My husband has been a patient at Mayo Phoenix for 3 years. He has been dealing...

https://connect.mayoclinic.org/comment/1147098/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2024

Comment

I got a second opinion from MD Anderson's Neuroendocrine research doctors who also recommended Everolimus. My...

https://connect.mayoclinic.org/comment/1118230/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

Comment

@kc43 how interesting that the initials in your mayo name of @kc43, is the exact initials...

https://connect.mayoclinic.org/comment/1110663/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2024

Comment

Me wife had a similar diagnosis. We did the CAP/TEM, surgery of removal of tail of...

https://connect.mayoclinic.org/comment/1105048/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 13, 2024

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