Neuroendocrine Tumors (NETs) Support Group

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Comment

You had 2 ft of small intestine removed due to NETs. I'm assuming you also had...

https://connect.mayoclinic.org/comment/1467938/

Discussion: Lanreotide side effects: Anyone having GI issues?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2025

Comment

@nannybb omygosh...it doesn't instill confidence, does it? Problem is, my surgeon is the head of GI...

https://connect.mayoclinic.org/comment/1418065/

Discussion: How can test be so different?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2025

Comment

Thank you all so much for your help and support. We are indeed very pleased with...

https://connect.mayoclinic.org/comment/1256916/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13, 2025

Comment

I have been receiving the Octreotide injections (Sandostatin, and now lanreotide) for 11 years, every 28...

https://connect.mayoclinic.org/comment/1197117/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 25, 2024

Comment

Hello @joneshome and welcome to the NETs support group on Mayo Connect. I appreciate you sharing...

https://connect.mayoclinic.org/comment/1118329/

Discussion: Anyone have problems with elevated blood pressure while on Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

Comment

Thank you so much for the responses! I have been out of pocket and just now...

https://connect.mayoclinic.org/comment/167648/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2017

Comment

@patrick031621 - I have similar conditions - surgery to remove huge pancreatic NET, metastastized to liver....

https://connect.mayoclinic.org/comment/856275/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

I was also going to suggest you look into the Ipsen Care program. They are the...

https://connect.mayoclinic.org/comment/1415524/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Comment

Hi I am writing this for my husband who has been diagnosed with neuro endocrine pancreatic...

https://connect.mayoclinic.org/comment/1324462/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2025

Comment

@laree - I have been in this journey for 2+ yrs. We also thought it was...

https://connect.mayoclinic.org/comment/1208982/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2025

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