Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,241 total results

Comment

Wondering How old is your wife? How big and how many tumors? How is the Nets...

https://connect.mayoclinic.org/comment/1197596/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 26, 2024

Comment

Hi. Glad to have friends on the subject. Just had surgery-ilioectemy, lymph nodes were cancerous. New...

https://connect.mayoclinic.org/comment/817446/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Comment

Hello Theresa. Can you tell me how serious a descending colon NET that has metastasized to...

https://connect.mayoclinic.org/comment/792586/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

Comment

I have we'll differentiated, grade 2 NET in tail of pancreas and spread to liver. Have...

https://connect.mayoclinic.org/comment/1266440/

Discussion: Well differentiated Neuroendocrine Grade 2 in rectum

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 10:39am

Comment

It just makes me nervous there is so few cases that I have found that a...

https://connect.mayoclinic.org/comment/952691/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

Comment

Small intestine surgery in 1998, liver surgery in 2016, PRRT beginning this year. Two treatments, two...

https://connect.mayoclinic.org/comment/728930/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2022

Comment

Thanks very much for your reply. I have been waiting for the Mayo Clinic E-Consult so...

https://connect.mayoclinic.org/comment/1161723/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

Comment

First time post here. Briefly, my wife started losing weight and feeling fatigued in the first...

https://connect.mayoclinic.org/comment/866425/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

Hi, @mollie59. I am a liver/kidney transplant recipient. 8-9 years ago, when I became very ill...

https://connect.mayoclinic.org/comment/175606/

Discussion: Carcinoid liver cancer/carcinoid heart disease/ kidney damage

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2017

Comment

It was 1.4 by 1.3 so relatively small. It reduced a 10th if a centimeter and...

https://connect.mayoclinic.org/comment/1358502/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 12:47pm

Follow

7137

1 minute ago

Digestive Health

Follow

16335

2 hours ago

Pancreatic Cancer

Follow

3101

3 hours ago

Cancer: Managing Symptoms

Follow

4905

5 hours ago

Follow

698

6 hours ago