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767 total results
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Discussions (69)
Comments (698)
Comment
@dipnech67 Robert Ramirez MD at Vanderbilt in Nashville is a NETS specialist who talks about DIPNECH...
https://connect.mayoclinic.org/comment/1054381/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2024
Comment
Most people have replied about CgA. I live in Uk and have grade 1, small bowel...
https://connect.mayoclinic.org/comment/1091150/
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Discussion:
What is a normal range for Chromogranin A test? Mine was 99 in 2021.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 21, 2024
Comment
I was diagnosed with a 1.7cm NETs nodule in my left lung first part of September....
https://connect.mayoclinic.org/comment/755085/
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Discussion:
Need help with diet after a hemicolectomy....
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 29, 2022
Comment
@firepowr if you don’t mind me asking, what have they said about yours that is considered...
https://connect.mayoclinic.org/comment/813521/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 18, 2023
Comment
Welcome @surbhi1. I added your message to the NETs Support Group as well as the cancer...
https://connect.mayoclinic.org/comment/793761/
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Discussion:
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
Support Group:
Kidney Cancer
Posted: Jan 7, 2023
Comment
Hi @mimi206 I have DIPNECH and lung NETs (typical carcinoids) with 50+ nodules so we are...
https://connect.mayoclinic.org/comment/1250591/
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Discussion:
DIPNECH diagnosis. Has anyone had radiation?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 4 7:24pm
Comment
@triveraderubio I had to go back and read through this entire thread to remember what you...
https://connect.mayoclinic.org/comment/962925/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 11, 2023
Comment
Hello all! New to the group. Diagnosed with PNET that have metastasized to liver, bone, lung....
https://connect.mayoclinic.org/comment/890587/
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Discussion:
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 5, 2023
Comment
Hi, my lung nodule was found incidentally. I had a benign lipoma removed from my abdomen,...
https://connect.mayoclinic.org/comment/827217/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 16, 2023
Comment
Is there a NET team anyone can recommend? I had a right upper lobe lobectomy in...
https://connect.mayoclinic.org/comment/794019/
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Discussion:
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
Support Group:
Kidney Cancer
Posted: Jan 8, 2023
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