Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

583 total results

Comment

Hi Carrie! I am do sorry to hear your news and I completely empathize with your...

https://connect.mayoclinic.org/comment/1073202/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2024

Comment

A quick update for the group as I don't think I have posted one in a...

https://connect.mayoclinic.org/comment/134732/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2021

Comment

I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....

https://connect.mayoclinic.org/comment/771371/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

Comment

Thank you Teresa. In August of 2019 I went to the ED for abdominal pain, after...

https://connect.mayoclinic.org/comment/257017/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2020

Comment

I am 69 years old and am diagnosed with multiple liver metastasis from lung carcinoid tumor....

https://connect.mayoclinic.org/comment/825019/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Comment

I am hoping someone on this site has a glucagonoma and their experience, please respond. 1...

https://connect.mayoclinic.org/comment/1350572/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 5:35pm

Comment

Followup answer: My invasive surgery (I’m a relatively healthy 80 year old man) was for a...

https://connect.mayoclinic.org/comment/783340/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

Comment

Hello @sweet63, Oh, I can so understand your concern! So many of us with a NET...

https://connect.mayoclinic.org/comment/776832/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2022

Comment

Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...

https://connect.mayoclinic.org/comment/1198299/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

Hi @mir123 Thanks for sharing your info. I understand there is little historical info to go...

https://connect.mayoclinic.org/comment/909352/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2023

Digestive Health

Follow

16070

1 minute ago

Follow

7012

3 hours ago

Visiting Mayo Clinic

Follow

5812

3 hours ago

Follow

8720

4 hours ago

Pancreatic Cancer

Follow

3041

4 hours ago