Neuroendocrine Tumors (NETs) Support Group

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Comment

Does your wife have carcinoid syndrome too? Her tumors and symptoms sounds similar to my husband's....

https://connect.mayoclinic.org/comment/887444/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2023

Comment

Your response is sincerely appreciated - My wife is scheduled for PRRT @Fred Hutch Seattle on...

https://connect.mayoclinic.org/comment/808550/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Comment

Sharon Update: Her Chromogranin level in the most recent test was 164 (a big spike from...

https://connect.mayoclinic.org/comment/776375/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Comment

Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....

https://connect.mayoclinic.org/comment/1198328/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

I'm exactly your age and my situation appears to be exactly like yours. But my journey...

https://connect.mayoclinic.org/comment/941331/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Comment

I did meet with the surgeon. The good news is the biopsy showed slow growth of...

https://connect.mayoclinic.org/comment/847055/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Comment

My husband had a carcinoid tumor removed from his intestinal area 20 years ago, then two...

https://connect.mayoclinic.org/comment/1072285/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2024

Comment

ki67 20% is borderline grade 3 (like my condition) so that will make it more aggressive...

https://connect.mayoclinic.org/comment/1394494/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2025

Comment

The Lanreotide needs to be warmed up at room temperature at least 20 min and the...

https://connect.mayoclinic.org/comment/1308297/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2025

Comment

Thank you for sharing and your wife is in my prayers. I was thinking all my...

https://connect.mayoclinic.org/comment/866477/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

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