Neuroendocrine Tumors (NETs) Support Group

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Comment

My brother was on a clinical trial using cabozantinib and nivolumab. Unfortunately, he had a lot...

https://connect.mayoclinic.org/comment/877316/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

They prefer to work on smaller-sized tumors and, although I had 5 done, that is unusual....

https://connect.mayoclinic.org/comment/1195166/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2024

Comment

I don't believe I have a team. Only symptoms are inconsistent bm's and some slight abdominal...

https://connect.mayoclinic.org/comment/1035653/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

Comment

@ahtaylor I would agree that you are blessed to be at Mayo and have such good...

https://connect.mayoclinic.org/comment/843301/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Comment

Thank you. No, I’ve not had a PET scan. I had symptoms and a CT showed...

https://connect.mayoclinic.org/comment/1229014/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4 4:41am

Comment

I have functioning gastrinomas the lanreotide helped my symptom control significantly and I started right after...

https://connect.mayoclinic.org/comment/1296743/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4 4:46pm

Comment

Hello @willam, It has been a while since you last posted. How are you doing? Have...

https://connect.mayoclinic.org/comment/900512/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2023

Comment

Good luck to you! I have Stage IV carcinoid originally in my ileum, and now in...

https://connect.mayoclinic.org/comment/1150045/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2024

Comment

Welcome, @teresea. You may be interested interested in this related discussion: - Bland embolization or transarterial...

https://connect.mayoclinic.org/comment/982346/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2023

Comment

The LACNET support group has a very interesting and supportive optimistic and helpful story the director...

https://connect.mayoclinic.org/comment/813998/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 19, 2023

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