Neuroendocrine Tumors (NETs) Support Group

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My husband has neuroendocrine pancreatic cancer . Diagnosed July of 2024. stage 3 grade 1. He...

https://connect.mayoclinic.org/comment/1451439/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2025

Comment

Hopefully, a moderator will jump on this discussion to offer you some links to follow, but...

https://connect.mayoclinic.org/comment/919233/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

Comment

While NETs is a complicated cancer it was an easy diagnosis. A CgA blood test followed...

https://connect.mayoclinic.org/comment/884142/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

I think I understand what you are saying. I simply don't believe a person that has...

https://connect.mayoclinic.org/comment/1351870/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2025

Comment

I started Somatulin/ Lanreotide Feb 15, 2023. My side effects are minimal now. However, the first...

https://connect.mayoclinic.org/comment/940458/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

The lanreotide and octreotide injections can be a little painful during the injection but side effectss...

https://connect.mayoclinic.org/comment/1439051/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2025

Comment

I tip my hat to you! The fact that you've had that much surgery and seem...

https://connect.mayoclinic.org/comment/1272388/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

Thanks very: much for sharing. Were you taking any medications prior to Lanreotide three months ago?...

https://connect.mayoclinic.org/comment/1171155/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Comment

Me too! The surgery is exhausting and so are the lanreotide treatments. I worked a job...

https://connect.mayoclinic.org/comment/875009/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

Comment

Hello. My husband is in the same condition as you but a little worse. He was...

https://connect.mayoclinic.org/comment/955218/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2023

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