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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Anyone have surgery to remove Net from base of messentry?
Anyone had surgery removing a net from the base of the mesentery? In January 2024, I had a part of my small intestine along with...
Last active: Jul 9 4:12pm
Discussion
After NET surgery I went from having hypothyroidism to hyperthyroidism
Hi! I have had hypothyroidism for many years. Now after my NET surgery on 8-7-23 in which the surgeon removed a large tumor in my...
Last active: Oct 23, 2023
Discussion
Need help with diet after a hemicolectomy....
This past year I was diagnosed with 2 primary NET's and had two surgeries to remove them. Since having a portion of small intestine/ileum removed...
Last active: Nov 4, 2023
Discussion
Diagnosing small bowel NETs with carcinoid syndrome
I have 2 questions about diagnostic tests. 1. Is oral barium contrast safe with a suspected or possible partial small intestinal obstruction? I'm concerned the...
Last active: Mar 19, 2025
Discussion
My Husband was newly diagnosed with Carcinoid Cancer
My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...
Last active: Aug 14, 2017
Discussion
Carcinoid Cancer and working
Hi my name is Audra and I was diagnosed with Carcinoid Cancer in 2016. I drove myself to the ER with severe pain and had...
Last active: Jul 31, 2018
Discussion
How to Prepare for Life without an Ileocecal Valve
My SB NET is next to the ileocecal Valve that is between the small and large intestine. They plan to remove it (and adjoining intestine,...
Last active: 2 hours ago
Discussion
Pain relief when lying flat?
Hello. I was diagnosed with NETs in February 2023: stage 4, grade 2, well-differentiated low-grade primary 5cm tumor in small intestine, Ki-67 5.4%, with METs...
Last active: Aug 2, 2023
Discussion
First Appt with Surgeon Oncologist for SB NET
Tomorrow will be 1 month since learning I had a small bowel NET at the ileocecal valve (found during a colonoscopy done bc of repeated...
Last active: Aug 19 1:02pm
Discussion
Everolimus for multiple Neuroendocrine tumors
I’ve been on this Mayo support group for a couple of years, but was always the one answering questions and making suggestions, not the one...
Last active: Aug 15, 2024