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Anyone have surgery to remove Net from base of messentry?
Anyone had surgery removing a net from the base of the mesentery? In January 2024, I had a part of my small intestine along with several lymph nodes, one of which was from the mesentery due to a net. However, there remains a slightly enlarged nodule at the base of the mesentery, when at the time of my initial surgery, it was not amendable for resection. I had a gallium 68 petscan done after my surgery and it showed the nodule had decreased in size (from 23 mm to 10 mm). My recent pet scan (May 2026) is showing signs of progression. My oncologist is recommending having it surgically removed, but I hear that operating in the base of the mesentery is rare and risky. I was referred to a surgical oncologist who specializes in operating in this area, and seems confident he can excise it. I curious if anyone has had surgery to remove a tumor from the base/root of the mesentery?
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Mine is in the center and inoperable without risking a bag … but Dr Divino from Mnt Sinai NY who I meet with has great experience with this kind of issue.
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2 Reactions@nevinrbaskin good morning, what do you mean by "without risking a bag"
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1 ReactionA colostomy bag and a risk to nip an artery in my situation.
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1 ReactionEvery situation is different
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2 ReactionsI would go to the Seena Magowitz Foundation and ask for a second opinion from Dr. Evens both a pancreas surgeon and vascular surgeon. Dr. Douglas B. Evans is the Chair of the Department of Surgery at the Medical College of Wisconsin (MCW) and is a globally recognized pancreatic cancer
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2 ReactionsEveryone has different presentations of NETs but here is my experience at MCW.
If you wish to go to the MCW, I suggest you see Dr. Calista Clarke who is a surgical oncologist specializing in GI cancers and NETs. She did my bowel resection and I needed a vascular reconfiguration. Because of the functions of what was removed, I live with a normal state of diarrhea that is managed with drugs and diet. My recovery was complicated with my drug and diet sensitivities and with a "crazy number of adhesions" that lead to bowel obstructions but otherwise all is going pretty good. (no bag)
I now go to Mayo for my NET care. They see several NETs patients every day so they have the knowledge, experience and treatment options that have made a great difference for me. My first recommendation is to go to Mayo if possible.
Best wishes. This is a weird cancer that few people really understand. Please be sure to address your emotional health as well.
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2 ReactionsThank you to everyone. This is really helpful information and I really appreciate your willingness in sharing your experiences and recommendations. This is definitely a faith walk. I take one day at a time and thank God for each day. The surgeon, Dr. George Younan, will perform the procedure. His specialty is complex Hepatobiliary (HPB) and Pancreatic surgery which appears to be similar to Dr Evans speciality. I hear he's the best here in Virginia. I am just a little anxious about the procedure.