Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

124 total results

Comment

Hi mama neuroendocrine, it sound like you’re on a similar path of hope in managing this...

https://connect.mayoclinic.org/comment/953639/

Discussion: Metastatic NeuroEndocrine Grade 3 - ki 80% -

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2023

Comment

Hello, My husband has NETS “insulinoma” also very rare. Pancreas metastasized to liver. He is currently...

https://connect.mayoclinic.org/comment/908363/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6, 2023

Comment

Morning! My primary was on my ilieum which metastasized to my liver and pancreas. I was...

https://connect.mayoclinic.org/comment/897949/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2023

Comment

Hello all! New to the group. Diagnosed with PNET that have metastasized to liver, bone, lung....

https://connect.mayoclinic.org/comment/890587/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 5, 2023

Comment

I also have insulinomas. . . Diagnosed originally in 2015 with 2 tumors in the pancreas,...

https://connect.mayoclinic.org/comment/867769/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

Comment

@patrick031621 - I have similar conditions - surgery to remove huge pancreatic NET, metastastized to liver....

https://connect.mayoclinic.org/comment/856275/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

@pete1962, I'd like to add to the helpful post from @lu7. (I wish you both successful...

https://connect.mayoclinic.org/comment/817128/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Comment

Greetings! Thanks for the post. I am happy to connect with you. I have been dealing...

https://connect.mayoclinic.org/comment/799602/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Comment

My sister was diagnosed with a well differentiated Pancreatic Neuroendocrine tumor Grade 3 Stage 4. It...

https://connect.mayoclinic.org/comment/1105243/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2024

Comment

@htam4, Hello! My tumor was in the tail of the pancreas entangled with the spleen, so...

https://connect.mayoclinic.org/comment/1097804/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2, 2024

1
2
3
4
5
6
…
10

Digestive Health

Follow

18682

54 minutes ago

Follow

8381

1 hour ago

Pancreatic Cancer

Follow

3657

1 hour ago

Melanoma & Skin Cancer

Follow

1157

1 hour ago

Follow

10265

1 hour ago