Support Groups

Neuroendocrine Tumors (NETs) Support Group

Lock icon Public Support Group
2,235 total results
Discussion
Lymph nodes removed during surgery removing tumors in the liver
I have received different information about removing lymph nodes when a surgery is done to remove tumors in the liver. I have an unknow origin...
Last active: Aug 30 12:21pm
Discussion
Neuroendocrine Lung stage 4B with metastasis in liver
I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...
Last active: Feb 7, 2023
Discussion
How does Alcohol use affect Liver NET?
How much is too much? How does it effect Liver NET?
Last active: Aug 28 11:13am
Discussion
New to NETs: Found lesions on liver during a health check
Went in for a healthy heart check and during ultrasound they saw spots on my liver. Had in quick order CT, biopsy, bone scan. Confirmed...
Last active: Jun 23, 2022
Discussion
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
Last active: Mar 2, 2024
Discussion
Straight to the liver: Anyone have NETs originating in strange areas?
I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...
Last active: Oct 4, 2024
Discussion
Liver neuroendocrine tumors: I would like to talk with others
I will like to know mora about i live in colombia Please i will like to talk with some one with the same
Last active: Jan 9, 2022
Discussion
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...
Support Group: Kidney Cancer
Last active: Jan 9, 2023
Discussion
Experience w/ watch and wait approach for metastatic liver tumor
I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...
Last active: Nov 10, 2024
Discussion
MRI or CatScan as follow up imaging for metastatic liver tumor?
I have read that MRI's provide better imaging for liver. Wondering what three month follow up imaging people are having for metastatic liver neuroendocrine tumors.
Last active: Jan 22 1:39pm