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Neuroendocrine Tumors (NETs) Support Group

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Discussion
Lost with no confirmation of NETs origin: Innumerable liver lesions
Hi, my dad-active 63 year old kept complaining of boating and dull stomach pain. I am a nurse but am not very familiar with oncology...
Last active: Mar 31, 2023
Discussion
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...
Last active: Mar 17, 2025
Discussion
Neuroendocrine Lung stage 4B with metastasis in liver
I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...
Last active: Feb 7, 2023
Discussion
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
Last active: Oct 28, 2025
Discussion
Straight to the liver: Anyone have NETs originating in strange areas?
I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...
Last active: Oct 4, 2024
Discussion
Liver function (birirubin, globulin, glucose, iron) and Octreotide
Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...
Last active: Mar 25, 2025
Discussion
How does Alcohol use affect Liver NET?
How much is too much? How does it effect Liver NET?
Last active: Aug 28, 2025
Discussion
Is MRI imaging on same machine for NETs + Liver metastases important?
I have been told by several drs and read that it is important to have your images taken on the same machine for the quarterly,...
Last active: May 20, 2025
Discussion
Lymph nodes removed during surgery removing tumors in the liver
I have received different information about removing lymph nodes when a surgery is done to remove tumors in the liver. I have an unknow origin...
Last active: Aug 30, 2025
Discussion
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver
Last active: May 8, 2025