Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
1,924 total results
Discussion
Grade 3, poorly differentiated duodenal NET metastasized to liver-
3 years ago, I had surgery to remove the duodenal NET diagnosed as grade 3 and poorly differentiated. After recovering from surgery, I had 6...
Last active: Mar 31 12:43pm
Discussion
New to NETs: Found lesions on liver during a health check
Went in for a healthy heart check and during ultrasound they saw spots on my liver. Had in quick order CT, biopsy, bone scan. Confirmed...
Last active: Jun 23, 2022
Discussion
I have a neuroendocrine tumour in the small bowel and liver lesions
I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.
Last active: Mar 2, 2024
Discussion
Straight to the liver: Anyone have NETs originating in strange areas?
I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...
Last active: Oct 4, 2024
Discussion
Carcinoid liver cancer/carcinoid heart disease/ kidney damage
Hi, I am looking for information and advice. On May 25,2017 I was diagnosed with carcinoid liver cancer. However, Carcinoid had already attacked my heart...
Last active: Jun 5, 2023
Discussion
Liver neuroendocrine tumors: I would like to talk with others
I will like to know mora about i live in colombia Please i will like to talk with some one with the same
Last active: Jan 9, 2022
Discussion
NET (Lung + liver metastatis) Radical nephrectomy done for RCC
I would like to know if there is another one with same case as mine - 2 primary tumor. 1) NET lung 2) RCC recently...
Support Group: Kidney Cancer
Last active: Jan 9, 2023
Discussion
Experience w/ watch and wait approach for metastatic liver tumor
I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...
Last active: Nov 10, 2024
Discussion
MRI or CatScan as follow up imaging for metastatic liver tumor?
I have read that MRI's provide better imaging for liver. Wondering what three month follow up imaging people are having for metastatic liver neuroendocrine tumors.
Last active: Jan 22 1:39pm
Discussion
After liver embolization: Looking for the best diet + food suggestions
We are looking for the best diet or food suggestions for after liver embolization. There is no nausea but still very weak. Monthly lanreotide shots...
Last active: Dec 11, 2023