Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi there, I'm new here. Doctors diagnosed me with a neuroendocrine tumor in the terminal ileum...

https://connect.mayoclinic.org/comment/1376327/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2025

Comment

@kgrear I live in Cairns australia. No net specialist here. I have a fantastic medical team....

https://connect.mayoclinic.org/comment/1435374/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2025

Comment

I am a patient of Dr Starr's at Mayo Clinic Jacksonville. My NETS were ileum primary...

https://connect.mayoclinic.org/comment/876912/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

My husband has much the same type of NET as you. It is grade 1 but...

https://connect.mayoclinic.org/comment/837108/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

Comment

I don’t want to scare you, but it was painful 5 hour surgery. I was hospitalized...

https://connect.mayoclinic.org/comment/1309905/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2025

Comment

@eesnerd How was your diagnosis confirmed? I get abdominal CT-scans every year to monitor my kidney...

https://connect.mayoclinic.org/comment/1522327/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8 9:54am

Comment

@chaplaindan In addition to the previous post (well done) - Based on my wife's battle with...

https://connect.mayoclinic.org/comment/1464472/

Discussion: Anyone had a significant difference between a CT and MRI reading?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2025

Comment

I was first diagnosed with NETs in 2004 so I’ve had LOTS of lab-work done over...

https://connect.mayoclinic.org/comment/889603/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

Comment

Hi, I am living in Adelaide. South Australia. I went through chemo with non Hodgkins lymphoma...

https://connect.mayoclinic.org/comment/819077/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Comment

Hi I had surgery in Australia in a regional town 3 years ago had 1.5m of...

https://connect.mayoclinic.org/comment/1310494/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2025

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