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Discussions (11)
Comments (46)
Comment
My metestatic carcinoid cancer was discovered by accident when my GYN was doing an endoscopic look...
https://connect.mayoclinic.org/comment/827308/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 17, 2023
Comment
He has never had symptoms of carcinoid syndrome yet so we are hopeful there are no...
https://connect.mayoclinic.org/comment/137533/
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Discussion:
My Husband was newly diagnosed with Carcinoid Cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2017
Comment
Hi Joan So you are one of the 75-80 families they have in the study. I...
https://connect.mayoclinic.org/comment/163587/
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Discussion:
NIH clinical study looking for the gene causing carcinoid cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 12, 2017
Comment
Hey Yes the CT was ordered because of suspected diverticulitis. But the net in my ilium...
https://connect.mayoclinic.org/comment/1010732/
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Discussion:
GI NET attached to pancreas supposedly non-producing
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6 3:03pm
Comment
Hi @hopeful33250 and thanks for reaching out. I went to the hospital on August 30th with...
https://connect.mayoclinic.org/comment/942618/
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Discussion:
Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 5, 2023
Comment
lots! And trying to get my oncologist or surgeon to call is not working! I have...
https://connect.mayoclinic.org/comment/1003419/
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Discussion:
NET in illeum, surgery or proper nutrition?!
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 25 8:37am
Comment
My wife (NETs) and I are very interested in nutrition. In 2015 and 2016 she had...
https://connect.mayoclinic.org/comment/275687/
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Discussion:
What topics do you want for the Neuroendocrine Support Group?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 1, 2019
Comment
Morning! My primary was on my ilieum which metastasized to my liver and pancreas. I was...
https://connect.mayoclinic.org/comment/897949/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18, 2023
Comment
i just had surgery for a NET in my illeum (end of small bowel but surgeon...
https://connect.mayoclinic.org/comment/1022718/
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Discussion:
I have a neuroendocrine tumour in the small bowel and liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 25 9:30pm
Comment
So sorry for the delayed response. I wish I had some useful info for what you...
https://connect.mayoclinic.org/comment/1028476/
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Discussion:
I had a right hemicolectomy 6 days ago. What helps nausea?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 6 7:30am
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