Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

221 total results

Comment

Hello @sadragliz and welcome to the NETs support group on Mayo Connect. The reasons why a...

https://connect.mayoclinic.org/comment/1243830/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23 1:04pm

Comment

There are only about 300 documented cases of DIPNECH which is why most doctors have never...

https://connect.mayoclinic.org/comment/1205680/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 1:15am

Comment

Hi @kole03 I hope you’re feeling well post lobectomy. You need to be followed by a...

https://connect.mayoclinic.org/comment/1328815/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 1:44am

Comment

Hello @lrittmiller and welcome to the NETs support group on Mayo Connect. We have many members...

https://connect.mayoclinic.org/comment/1107836/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2024

Comment

Jan, sorry to hear about all of your health challenges. Sometimes DIPNECH is misdiagnosed as asthma...

https://connect.mayoclinic.org/comment/1222295/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26 1:18pm

Comment

Anyone diagnosed with DIPNECH? I’ve had 3 injections of Octreotide so far. I started having GI...

https://connect.mayoclinic.org/comment/1193098/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2024

Comment

No I am not. My pathology after my lung surgery was sent to Mayo, and that...

https://connect.mayoclinic.org/comment/1288895/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 11:26am

Comment

Hi @jhhaas, I'm tagging fellow members like @mcohan @magnum2 @meryls12 @californiazebra who have experience with DIPNECH...

https://connect.mayoclinic.org/comment/976431/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2023

Comment

@kristin3 -- typical carcinoids are the best kind to have. They are the slow growing kind....

https://connect.mayoclinic.org/comment/849473/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Apr 26, 2023

Comment

Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...

https://connect.mayoclinic.org/comment/1108887/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

Pancreatic Cancer

Follow

3082

19 minutes ago

Follow

7108

38 minutes ago

Follow

691

39 minutes ago

Visiting Mayo Clinic

Follow

5903

4 hours ago

Digestive Health

Follow

16272

4 hours ago