Neuroendocrine Tumors (NETs) Support Group

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Update for folks who have been so helpful - doctor appointment hard but useful. Lanreotide alone...

https://connect.mayoclinic.org/comment/1328851/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

I was diagnosed in Jan. with pancreatic tumors in the tail of my pancreas that has...

https://connect.mayoclinic.org/comment/1268556/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 28, 2025

Comment

@k8lyn23 i was diagnosed on 1/5/23 via a biopsy with approx 25 cancerous lesions on my...

https://connect.mayoclinic.org/comment/812349/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

Hello! I have similar diagnosis - pNET and liver metastases. Surgery for the pNET and debulking...

https://connect.mayoclinic.org/comment/1076200/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Comment

Hi, I have had 2 of these scans, one in 3/23 and my second on 2/20/24,...

https://connect.mayoclinic.org/comment/1024460/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2024

Comment

His Dr. initially wanted him to take a break from chemo after six months but with...

https://connect.mayoclinic.org/comment/885634/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

Hello to all injection recipients............. In these times, I believe it's imperative that we know how...

https://connect.mayoclinic.org/comment/1408764/

Discussion: Lanreotide shot given too fast, any side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2025

Comment

Check out online sites like Neuroendocrine Tumor Research Foundation to locate what to eat with NETs,...

https://connect.mayoclinic.org/comment/938740/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2023

Comment

We 'Zebras' will likely have different reactions to treatments. The Oncologist (specializing in NET's) is the...

https://connect.mayoclinic.org/comment/1232825/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2025

Comment

@kdubbs I have both DIPNECH and lung NETs. Your best bet finding someone to treat DIPNECH...

https://connect.mayoclinic.org/comment/1532862/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 12:39pm

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