Neuroendocrine Tumors (NETs) Support Group

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Comment

I had severe stomach pain for years, VA doctor gave me acid reflux medicine and been...

https://connect.mayoclinic.org/comment/879728/

Discussion: Adenocarcinoma with Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Comment

My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors...

https://connect.mayoclinic.org/comment/866558/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

I was diagnosed with a 2 cm grade 2 with Ki67 4% in the terminal ileum....

https://connect.mayoclinic.org/comment/1365552/

Discussion: 14 CM PNET w/ one year post resection. When will I see reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7, 2025

Comment

Thought I would give an update. I just made several trips to Mayo in Rochester. I...

https://connect.mayoclinic.org/comment/1248641/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2025

Comment

If the cancer has not metastasized and they are willing to do the surgery it is...

https://connect.mayoclinic.org/comment/1088907/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2024

Comment

I had PRRT for metastatic tumors in my liver. The plan is no treatment until they...

https://connect.mayoclinic.org/comment/1060197/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2024

Comment

@ggiinnaa I have been on chemo for over three years to shrink and control my NET...

https://connect.mayoclinic.org/comment/1427505/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

Comment

@dbamos1945 Hi again - re: close to the portal vein question - I had a bland...

https://connect.mayoclinic.org/comment/1410591/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2025

Comment

I had my Lutathera treatments last year, Outside of fatigue for a few days, I did...

https://connect.mayoclinic.org/comment/1525847/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13 9:16am

Comment

For lesions in section 5 and 8 of the liver, can you compare surgery vs SBRT...

https://connect.mayoclinic.org/comment/1311640/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: Archive

Support Group: Pancreatic Cancer

Posted: May 24, 2025

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