Neuroendocrine Tumors (NETs) Support Group

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Our case also was stage 4 with too many tumors on liver to count. Not eligible...

https://connect.mayoclinic.org/comment/1106247/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

Comment

They did a pet scan right before surgery, and did not find any metastasis to my...

https://connect.mayoclinic.org/comment/902877/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2023

Comment

Surgery update: Kim had surgery today to remove remove remaining mass on pancreas, remove gall bladder,...

https://connect.mayoclinic.org/comment/819734/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Comment

The problem with blanket statements like your doctor told is that we all have different types...

https://connect.mayoclinic.org/comment/861136/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

Hello @rushlakekathy and welcome to the NET discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814504/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

I have pNET grade stage4 with liver metastases. I have not noticed any swelling. I am...

https://connect.mayoclinic.org/comment/883583/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

So your NET started in your liver too? That is rare. Was it therefore stage 4...

https://connect.mayoclinic.org/comment/1148306/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2024

Comment

iam doing ok. but i have lots of diarrhea. liver is swollen, very fatigue. The oncologist...

https://connect.mayoclinic.org/comment/1038396/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Comment

I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...

https://connect.mayoclinic.org/comment/831689/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Hello @sophiarose, I certainly look forward to hearing from you again. Has your MRI of the...

https://connect.mayoclinic.org/comment/829494/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

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