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Discussions (38)
Comments (377)
Comment
Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...
https://connect.mayoclinic.org/comment/1142739/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 17, 2024
Comment
Good to know. Just frustrating that no one ever suggested the SOB on exertion was related...
https://connect.mayoclinic.org/comment/1108851/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
Comment
Hello @dolly123 and welcome to Mayo Connect. As you posted in the NETs (Neuroendocrine Tumors) support...
https://connect.mayoclinic.org/comment/1062285/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2024
Comment
General question...have NETS. I'm both lungs. The GA-68 Pet/scan. Reference my liver SUV. # was very...
https://connect.mayoclinic.org/comment/1054473/
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Discussion:
NET not found on PET/CT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 20, 2024
Comment
Has anyone had a combo of NETS...then a strange b!old starting low, low Iron, infusions, brought...
https://connect.mayoclinic.org/comment/1031321/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 10, 2024
Comment
I went out of NETWORK and the area to get a second opinion from a NET...
https://connect.mayoclinic.org/comment/989286/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 31, 2023
Comment
Welcome, @clintwlively. I've added your discussion to the Neuroendocrine Tumors (NETs) Support Group as well -...
https://connect.mayoclinic.org/comment/981815/
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Discussion:
Stage four high-grade neuroendocrine carcinoma
Support Group:
Lung Cancer
Posted: Dec 16, 2023
Comment
I too am Atypical lung net. It has spread to liver and several vertebrae in my...
https://connect.mayoclinic.org/comment/939666/
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Discussion:
Atypical Lung NET treated with radiation: What was your outcome?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 1, 2023
Comment
I have 2 NETS in my right lung. I am treating it with homeopathic tinctures, spiritual,...
https://connect.mayoclinic.org/comment/913605/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 15, 2023
Comment
I just had my what has become a yearly as opposed to every three to six...
https://connect.mayoclinic.org/comment/854136/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4, 2023
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