Neuroendocrine Tumors (NETs) Support Group

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Comment

My NET was primary in lung (Jan 2023) 3 cm and metastasized to liver stage 1,...

https://connect.mayoclinic.org/comment/1350571/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

Sorry to hear what you are going through! I have stage 4 grade 2 metatastic to...

https://connect.mayoclinic.org/comment/1282937/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

Comment

Hi Kathy, My sister just started her Lanreotide injections two months ago. After her first one,...

https://connect.mayoclinic.org/comment/934805/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Comment

@tomrennie Thank you for the warm welcome, I appreciate it. At this stage, the main plan...

https://connect.mayoclinic.org/comment/1496306/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 10:56am

Comment

Interesting. The main symptom I have is the constant diarrhea however when I was taking lanreotide...

https://connect.mayoclinic.org/comment/933770/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2023

Comment

I also have been diagnosed with liver NETS here in Panama. My oncologist started me on...

https://connect.mayoclinic.org/comment/1539378/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: 1 day ago

Comment

Dear Doonman Lanreotide shots have been helpful for me with lowering progression and symptoms. I have...

https://connect.mayoclinic.org/comment/1505397/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 8:19am

Comment

Hi Peter Are the liver Mets the full extent of your disease now? If so, has...

https://connect.mayoclinic.org/comment/1000541/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2024

Comment

Thank you for your encouragement. The exhaustion comes & goes. The primary is a carcinoid, very...

https://connect.mayoclinic.org/comment/977617/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

Comment

I will have my 4th injection next week. My symptoms include the tumor pains, chills, wetting...

https://connect.mayoclinic.org/comment/849018/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

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