Neuroendocrine Tumors (NETs) Support Group

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Hello dhtaylor! My HPB surgeon warned me that the medication used for NET care ( Somatulin/Lanreotide)...

https://connect.mayoclinic.org/comment/944197/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2023

Comment

Just about 1 year after starting Lanreotide. My initial diagnosis (discovered during a scan for another...

https://connect.mayoclinic.org/comment/729621/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2022

Comment

My wife, @Kim1965, was diagnosed with NET April 2022, with mass on tail of pancreas and...

https://connect.mayoclinic.org/comment/793540/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Comment

Thank you Teresa for the link to the Carcinoid Foundation. My symptoms were: blood in urine...

https://connect.mayoclinic.org/comment/267671/

Discussion: Newly diagnosed with NET in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2019

Comment

I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from...

https://connect.mayoclinic.org/comment/1161712/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23 5:24pm

Comment

Hello @kim1965 I'm glad that you were able to read the experience of @outlawcancer in order...

https://connect.mayoclinic.org/comment/817613/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Comment

Yes they say mine is not going to kill me but it’s necessary to have surgery....

https://connect.mayoclinic.org/comment/217187/

Discussion: Bladder Cancer: High Grade Neuroendocrine Carcinoma (Small Cell)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2018

Comment

Hello - one year ago August of ‘23 I was diagnosed with Acinar Pancreatic Cancer with...

https://connect.mayoclinic.org/comment/1166095/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1 8:50am

Comment

I had gerd for years so I had EGD’S a lot. Had a cholecystectomy 5 years...

https://connect.mayoclinic.org/comment/176519/

Discussion: Treatment for Stage IV Ampullary Cancer

Support Group: Cancer

Posted: Dec 1, 2017

Comment

I've had MRI'S and CT scans (5) with contrasting. Had my latest Friday my 12th chemo...

https://connect.mayoclinic.org/comment/807241/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

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