Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

987 total results

Comment

Since banana is a “no-no” on my lanreotide list, how are you able to eat them...

https://connect.mayoclinic.org/comment/939446/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Comment

I have pNET grade 2 stage 4 ( due to metastases in liver). I had distal...

https://connect.mayoclinic.org/comment/881155/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

@tgsenn70 It's a small world. I was referred to Dr Rose too back in '23. Due...

https://connect.mayoclinic.org/comment/1445215/

Discussion: NET Specialist: Can you share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2025

Comment

Hello, my NET is metastasized to my liver from my lung diagnosis in Dec 2022. My...

https://connect.mayoclinic.org/comment/1349514/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2025

Comment

This page is active I watch the comments and jump in when appropriate. Great way to...

https://connect.mayoclinic.org/comment/1463460/

Discussion: Anyone have problems with elevated blood pressure while on Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2025

Comment

Me too. Im 55yr old man and had my 3rd injection 2 days ago for the...

https://connect.mayoclinic.org/comment/842731/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Comment

Hello @roseflame and welcome to Mayo Connect. I appreciate you sharing your journey with NETs. You...

https://connect.mayoclinic.org/comment/795422/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

Comment

I only had a biopsy on my liver. I have many tumors of all sizes on...

https://connect.mayoclinic.org/comment/1237754/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

Comment

Hi Kathy, My sister just started her Lanreotide injections two months ago. After her first one,...

https://connect.mayoclinic.org/comment/934805/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Comment

My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors...

https://connect.mayoclinic.org/comment/866558/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Follow

8104

9 minutes ago

Digestive Health

Follow

18152

11 minutes ago

Cancer: Managing Symptoms

Follow

5584

14 minutes ago

Follow

905

14 minutes ago

Pancreatic Cancer

Follow

3523

19 minutes ago