Neuroendocrine Tumors (NETs) Support Group

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Thought I would give an update. I just made several trips to Mayo in Rochester. I...

https://connect.mayoclinic.org/comment/1248641/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2 11:11am

Comment

I had severe stomach pain for years, VA doctor gave me acid reflux medicine and been...

https://connect.mayoclinic.org/comment/879728/

Discussion: Adenocarcinoma with Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Comment

My wife was diagnosed with NET with mass on tail of pancreas, and too many tumors...

https://connect.mayoclinic.org/comment/866558/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Comment

Hello @willam and welcome to the NETs support group on Mayo Connect. You ask an interesting...

https://connect.mayoclinic.org/comment/883410/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

Me. 2 yrs. PNET with liver mets, stage 4. Also endometrial cancer There is a good...

https://connect.mayoclinic.org/comment/1225138/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30 6:13am

Comment

They found a number of NET's on a standard CT scan done in March 2025 based...

https://connect.mayoclinic.org/comment/1384956/

Discussion: Has anyone had NET show up on CT scan, I had CT scan in 23

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2 10:48am

Comment

Are you still on CapTem. I have been in on it for 6 months. Dr. Hopes...

https://connect.mayoclinic.org/comment/1367019/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9 11:56am

Comment

Hello, how long since you were originally diagnosed with NETs? I am trying to determine what...

https://connect.mayoclinic.org/comment/952977/

Discussion: Liver Transplant to Treat NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

Comment

Hello..I am 29 yr old boy from India diagoned with net tumor in small bowel and...

https://connect.mayoclinic.org/comment/786092/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Comment

If the cancer has not metastasized and they are willing to do the surgery it is...

https://connect.mayoclinic.org/comment/1088907/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2024

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