Neuroendocrine Tumors (NETs) Support Group

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Comment

I have had all stool tests, ct liver belly, pancreas and ldct lung which showed 6...

https://connect.mayoclinic.org/comment/823720/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

Comment

My husband also has one in the small intestine that metastasized to the liver & spine,...

https://connect.mayoclinic.org/comment/885632/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver...

https://connect.mayoclinic.org/comment/1023918/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27 5:52pm

Comment

100% agree, make sure the doctor is a NET specialist. I’m on my 3rd hospital. The...

https://connect.mayoclinic.org/comment/824035/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2023

Comment

@mollie59 As you probably know already, carcinoids or NETs are rather rare. I certainly recommend that...

https://connect.mayoclinic.org/comment/160164/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2017

Comment

Hello @osiejay26 and welcome to the NET discussion group on Mayo Connect. I can understand that...

https://connect.mayoclinic.org/comment/804430/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

Comment

I did not tolerate well the milk shakes, probably due to milk, but also cacao is...

https://connect.mayoclinic.org/comment/919089/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

Comment

Hi! I am also getting 4th mo SamotulineDepot injections due to small intestine NET primary with...

https://connect.mayoclinic.org/comment/810312/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

Hi I am happy to engage a conversation on my personal email if you would like!...

https://connect.mayoclinic.org/comment/807004/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

I do not see my specialist until mid June, but I did see my gp. I...

https://connect.mayoclinic.org/comment/1075835/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27 3:28pm

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