Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @carm1011 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/890939/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2023

Comment

My Journey of doctors and second opinions - Local Community PCP ordered Ultrasound because of Liver...

https://connect.mayoclinic.org/comment/842699/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

Comment

@ahtaylor I was noticing that you were going to have a calcium stimulation test. Has that...

https://connect.mayoclinic.org/comment/839748/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

Comment

Anyone taking this treatment for liver nets? What time of day did you take it? Side...

https://connect.mayoclinic.org/comment/1295469/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2025

Comment

Did the cancer go into your veins like myself? My spleen, gall bladder, and liver are...

https://connect.mayoclinic.org/comment/1321081/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

Comment

That was 8/22 when I got diagnosed with a pancreatic NET that spread to my liver....

https://connect.mayoclinic.org/comment/935792/

Discussion: Follow up surgery for PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

Comment

My experience is very similar to those of @firepowr. Three of the largest tumors in my...

https://connect.mayoclinic.org/comment/828121/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

Comment

@hollywood817 What prompted the biopsy, did You have imaging done before. I have plenty of liver...

https://connect.mayoclinic.org/comment/812431/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Comment

I have pNET with liver metastases. I had leg swelling after my first CAPTEM treatment. It...

https://connect.mayoclinic.org/comment/883873/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

I do not have experience with ostricide shots but usually given it prior to any medical...

https://connect.mayoclinic.org/comment/1266755/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2025

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