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Discussions (47)
Comments (536)
Comment
Welcome @grammabitz. You are understandably nervous. I'm tagging fellow members like @joannem @gaylejean @carcinoid23462 @char1962 @sophiarose...
https://connect.mayoclinic.org/comment/776338/
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Discussion:
Does sandostatin work?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 22, 2022
Comment
Hi @jan355 I'm so sorry to hear about your oxygen issues and for so many years....
https://connect.mayoclinic.org/comment/1220927/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 24 10:48pm
Comment
I was diagnosed in March 2018 with NETs in multiple locations after having a blockage in...
https://connect.mayoclinic.org/comment/807089/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2023
Comment
@ronjake, I’ve been on injections of Octreotide for 5+ years and only had a lump twice...
https://connect.mayoclinic.org/comment/898742/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
Comment
I just told the nurse that gave me my octreotide shot this week that sometimes the...
https://connect.mayoclinic.org/comment/883399/
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Discussion:
Advice for making monthly injections more tolerable
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 23, 2023
Comment
Hello @monkey5333 and welcome to the NETs discussion on Mayo Connect. Yes, I have had the...
https://connect.mayoclinic.org/comment/802775/
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Discussion:
Neuroendocrine tumor: What tests are used for diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 28, 2023
Comment
You definitely need to get a second opinion from a NETs specialist. Other types of lung...
https://connect.mayoclinic.org/comment/1242687/
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Discussion:
DIPNECH diagnosis. Has anyone had radiation?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 22 2:36am
Comment
I also have tumor metastases on my spine and ribs, unknown primary. Diagnosed Jan 2020, multiple...
https://connect.mayoclinic.org/comment/810800/
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Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2023
Comment
I am struggling with exhaustion and pain in my legs as well as a weight gain...
https://connect.mayoclinic.org/comment/1249794/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 3 7:18pm
Comment
Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...
https://connect.mayoclinic.org/comment/851440/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 29, 2023
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