Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband took Octreotide shots for about 18 months & some months after the shot he...

https://connect.mayoclinic.org/comment/1269503/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2025

Comment

Yes! Sorry you're so sick! Are you even sure it's from the NETs and not a...

https://connect.mayoclinic.org/comment/888985/

Discussion: Should I go to the ER? I’m sicker than I’ve ever been.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 2, 2023

Comment

Thanks for your update, @megansims. I am glad to hear that your symptoms have improved with...

https://connect.mayoclinic.org/comment/271269/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2019

Comment

I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I...

https://connect.mayoclinic.org/comment/1205143/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 6, 2025

Comment

Hi @triveraderubio and others with DIPNECH and Lung NETs. I hope the octreotide is working for...

https://connect.mayoclinic.org/comment/834726/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2023

Comment

Because of the possibility of carcinoid crisis due to epinephrine, I decided to wear a medical...

https://connect.mayoclinic.org/comment/137534/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

Comment

Hi Jane @gram26 I would agree with Theresa to check out all the DIPNECH comments on...

https://connect.mayoclinic.org/comment/882190/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

Comment

I had a modified Whipple in 2015 for insulinomas x 2. 3 months later had more...

https://connect.mayoclinic.org/comment/1267600/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26, 2025

Comment

I was diagnosed in 2023, this was all found on accident as I was involved in...

https://connect.mayoclinic.org/comment/1102518/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2024

Comment

Has anyone been advised to use a celiac plexus nerve block for back and upper abdominal...

https://connect.mayoclinic.org/comment/1019957/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Feb 21, 2024

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