Neuroendocrine Tumors (NETs) Support Group

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Comment

@jukebox42 Sorry you feel stressed. Is this a new diagnosis for you? I posted about octreotide...

https://connect.mayoclinic.org/comment/1254968/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 4:47pm

Comment

Good morning!!! As I mentioned above, I was diagnosed January 2020, grade 3 (Ki67 17-29 depending...

https://connect.mayoclinic.org/comment/1247365/

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28 12:10pm

Comment

My fiance was diagnosed with NETs in Sept of this year after 3 ED visits with...

https://connect.mayoclinic.org/comment/1197766/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I...

https://connect.mayoclinic.org/comment/1205143/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 6 9:07am

Comment

Hi ggiinnaa I am not a lung net person but I know as we get older,...

https://connect.mayoclinic.org/comment/1265572/

Discussion: Could a mass on adrenal gland be linked to my carcinoid lung tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24 9:30am

Comment

That's amazing ! I feel very blessed an encouraged by this,The largest nodule in my lung...

https://connect.mayoclinic.org/comment/1330481/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 10:02am

Comment

Are you taking a treatment? So interesting, these various symptoms, like GERD! I had it for...

https://connect.mayoclinic.org/comment/1330063/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 4:06pm

Comment

I had a small nodule removed last year that was confirmed to be neuroendocrine lung net....

https://connect.mayoclinic.org/comment/1343726/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 8 12:14pm

Comment

Hello @panorman3 and welcome to the NETs support group on Mayo Connect. You say in your...

https://connect.mayoclinic.org/comment/1247054/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28 7:06am

Comment

My understanding is a grade 3 of the lung is considered small cell or non small...

https://connect.mayoclinic.org/comment/813610/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

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