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Discussions (189)
Comments (2,051)
Comment
Hi I had an exceptional NET specialist who started me Lanreotide after 3 injections the side...
https://connect.mayoclinic.org/comment/847916/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 23, 2023
Comment
As I said there have no treatments for the past 5 months. I did have Lanreotide...
https://connect.mayoclinic.org/comment/1209962/
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Discussion:
I am one year out with my diagnosis just finished 4th round of PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 12 1:54pm
Comment
The Y 90 treatment was to my husband‘s liver, 1/2 at a time, after a mapping...
https://connect.mayoclinic.org/comment/1055461/
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Discussion:
Updating about My Lanreotide Injections & CT Scan
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 22, 2024
Comment
Good morning all, I have NET, pancreas to liver. I don’t have diabetes but the numerous...
https://connect.mayoclinic.org/comment/836139/
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Discussion:
Anyone dealing with Carcinoid NETs with Diabetes?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 2, 2023
Comment
I have NET metastasis liver cancer I have been told by 3 drs that they don’t...
https://connect.mayoclinic.org/comment/835279/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 31, 2023
Comment
Hello @jiangmx24, I appreciate your update regarding the consultation for Histotripsy. It sounds like you received...
https://connect.mayoclinic.org/comment/1189081/
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Discussion:
Has anyone out there tried Histotripsy for tumors in the liver?
Support Group:
Liver Cancer
Posted: Dec 12, 2024
Comment
There are many liver directed therapies available, including surgery. Different forms of embolizations, ablation, histotripsy, etc....
https://connect.mayoclinic.org/comment/1294976/
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Discussion:
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 2 10:56am
Comment
Update: interval progression with growth in both lobes of liver, growth of pancreatic mass, probably colon,...
https://connect.mayoclinic.org/comment/1326182/
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Discussion:
First scan after 3 months of lanreotidec
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 13 7:49am
Comment
Thanks for sharing your story. My doctor told me good chance my next one would probably...
https://connect.mayoclinic.org/comment/1236677/
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Discussion:
I recently had surgery to remove NET in small intestine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14 10:11am
Comment
I haven’t had an official diagnosis of Insulinoma but my symptoms definitely look like one (per...
https://connect.mayoclinic.org/comment/1352406/
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Discussion:
Insulinoma and back pain
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20 11:43am
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