Neuroendocrine Tumors (NETs) Support Group

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Comment

I too respect your decision. But I can tell you that my diagnosis was stage IV....

https://connect.mayoclinic.org/comment/942810/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 6, 2023

Comment

I understand how you are feeling, my two youngest were 6 when I was diagnosed with...

https://connect.mayoclinic.org/comment/800359/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

Comment

Thank you for sharing. This is very good, helpful information. Im in Oklahoma, and have found...

https://connect.mayoclinic.org/comment/872994/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Jun 5, 2023

Comment

Thank you! I had my first CT scan after surgery and 3 Lan injections. No tumour...

https://connect.mayoclinic.org/comment/876264/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2023

Comment

STOMACH NET! Having a STOMACH NET is indeed an esoteric experience and different from the lung,...

https://connect.mayoclinic.org/comment/896811/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Comment

So I am also grade 2 stage 4 ki-67 7% metatasic to both sides of the...

https://connect.mayoclinic.org/comment/978339/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

Comment

@fae As a fellow Wisconsin Badger, my wife has dealt with the past 9 months, similar...

https://connect.mayoclinic.org/comment/827529/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Comment

Always keeping the fight! Glad to hear you have a great experience at Dana Farber. Being...

https://connect.mayoclinic.org/comment/943748/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

Comment

@cangre82, a lot of us have done your path, and we tell you our story and...

https://connect.mayoclinic.org/comment/1074865/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 8:29am

Comment

My sisters has now spread to the peritoneam (lining of the abdomen), and pelvic area. She...

https://connect.mayoclinic.org/comment/1100726/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7 7:25am

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