Neuroendocrine Tumors (NETs) Support Group

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Comment

My embolization was January 12, 2023 It took me about a month to truly recover After...

https://connect.mayoclinic.org/comment/829069/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2023

Comment

@tgsenn70 Sure. But first, is your husband seeing a net specialist? Is the iv chemotherapy you...

https://connect.mayoclinic.org/comment/1404439/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2025

Comment

She has a well-differentiated grade 3 PNET that metastases to the liver. There were quite a...

https://connect.mayoclinic.org/comment/934866/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Comment

Hi, Mark! I started PRRT with Lutathera in December 2022. I had three treatments. Scans in...

https://connect.mayoclinic.org/comment/881873/

Discussion: Post Lu177 PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

I have not had the calcium stimulation test yet. It is coming up soon. However, I...

https://connect.mayoclinic.org/comment/839764/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

Comment

I had surgery on Feb.1. Distal pancreatectomy, removal of part of the stomach, gallbladder and spleen.,...

https://connect.mayoclinic.org/comment/822921/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8, 2023

Comment

Start of a new journey: Pathology report of liver biopsy indicating metastatic high grade neuroendocrine cell...

https://connect.mayoclinic.org/comment/810954/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Comment

@laree That sounds like a really interesting and promising 2 punch approach, especially considering 25% ki67....

https://connect.mayoclinic.org/comment/1342304/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2025

Comment

What is your gastrin now? I too have gastrinomas I had a perforated esophagus I have...

https://connect.mayoclinic.org/comment/1330117/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2025

Comment

I had 60% of my colon removed 5 years ago. I am glad you caught it...

https://connect.mayoclinic.org/comment/1011779/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

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