Neuroendocrine Tumors (NETs) Support Group

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Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272924/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

dougt, your Doc said no diet restrictions. Why only eat those 3 raw vegetables at lunch...

https://connect.mayoclinic.org/comment/1142890/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2024

Comment

I get the shot (Lanreotide) every 21 days and had my 41st injection yesterday. Fatigue is...

https://connect.mayoclinic.org/comment/1315505/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 29, 2025

Comment

I was diagnosed march of this year with a mass in mysmall intestine. Had surgery to...

https://connect.mayoclinic.org/comment/919630/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 27, 2023

Comment

I'm sorry you're seeing progression. Sounds like it's time for some treatment. I strongly recommend that...

https://connect.mayoclinic.org/comment/1432863/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

Comment

Well differentiated, grade 2, neuroendocrine tumors in tail of pancreas and spread to some lobes of...

https://connect.mayoclinic.org/comment/1265518/

Discussion: Well differentiated Neuroendocrine Grade 2 in rectum

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2025

Comment

My wife has stage 4 technically with mass on pancreas and metastasis on liver. But after...

https://connect.mayoclinic.org/comment/843780/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

Comment

@laree I would assume the maintenance shots are Octreotide or Lanreotide injections done on a monthly...

https://connect.mayoclinic.org/comment/1401182/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2025

Comment

Hi, yes my oncologist is a NET specialist at Baylor Sammons in Dallas. The Y90 was...

https://connect.mayoclinic.org/comment/1360233/

Discussion: Anyone on cabozantinib after Y90

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30, 2025

Comment

@dbamos1945: Somatuline Depot is the brand name for the generic lanreotide; it's like calling Tylenol acetominophen....

https://connect.mayoclinic.org/comment/1334506/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2025

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