Neuroendocrine Tumors (NETs) Support Group

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Comment

It was a ' combined' pancreatectomy ( with spleen and gallbladder removal), liver debulking AND hysterectomy...

https://connect.mayoclinic.org/comment/847119/

Discussion: Who has had Distal Pancreatectomy and regretted it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2023

Comment

Hello @dbamos1945 I just noticed that @caitrina's post is in the liver debulking group, however, she...

https://connect.mayoclinic.org/comment/780507/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

Comment

Hello, my husband has stage 4 Neuroendocrine Tumor Cancer. He had a large tumor on his...

https://connect.mayoclinic.org/comment/1408542/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2025

Comment

In my experience every time I read the latest scans summary, it's a day of new...

https://connect.mayoclinic.org/comment/1219632/

Discussion: Liver masses found on CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2025

Comment

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small...

https://connect.mayoclinic.org/comment/163994/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

Comment

Have worsening symptoms for close to 20 years but much progression since Sep 21 with multiple...

https://connect.mayoclinic.org/comment/748820/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Comment

@kgrear mine are tiny too. another recommended treatment for multiple liver lesions they may try is...

https://connect.mayoclinic.org/comment/1435702/

Discussion: S4, G2 NETS in mesentery. Declined Exploratory Surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2025

Comment

MRI about every 4 months, eating is going too well. Thus the increased severity of Fatty...

https://connect.mayoclinic.org/comment/1203376/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2025

Comment

Husband was diagnosed in Nov. of last year with low grade neuroendocrine carcinoma which started at...

https://connect.mayoclinic.org/comment/941333/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Comment

That report my say metastatic to liver because I've read that neuroendocrine doesn't typically originate in...

https://connect.mayoclinic.org/comment/1158066/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 16, 2024

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