Neuroendocrine Tumors (NETs) Support Group

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Comment

Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...

https://connect.mayoclinic.org/comment/1108887/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

Comment

@bnjncrew, I'd like to add my welcome. I augmented the title of your discussion to reflect...

https://connect.mayoclinic.org/comment/831812/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

My husband has one tumor on his pancreas and “innumerable” lesions in his liver. They started...

https://connect.mayoclinic.org/comment/831010/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

Welcome, @edotagle57. As you've learned, VIPomas are rare functioning neuroendocrine tumors that secrete vasoactive intestinal polypeptide...

https://connect.mayoclinic.org/comment/762902/

Discussion: NET-VIPoma pancreatic tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Comment

Hi! I’m so sorry to hear about your husband’s diagnosis. I believe in asking as many...

https://connect.mayoclinic.org/comment/1201611/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2025

Comment

I have metastasis liver net with unknown primary they believe it is in my gut I...

https://connect.mayoclinic.org/comment/922592/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

Comment

@vinnie694 Mine are similar to both, Small intestines with liver mets, stage 2, grade 4, Ki-67...

https://connect.mayoclinic.org/comment/1415454/

Discussion: I have a neuroendocrine tumour in the small bowel and liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Comment

In adittion...... Could be usefull to know the complete biopsy description: Ki, Grade, Functional or not,...

https://connect.mayoclinic.org/comment/1292233/

Discussion: Anyone else have Gastric NET? Going to Mayo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 28, 2025

Comment

So weird to hear of someone else having Autoimmune Atrophic Gastritis and nets in the stomach....

https://connect.mayoclinic.org/comment/1292214/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 28, 2025

Comment

Thanks for sharing. Do I understand that when you were diagnosed two years ago, you had...

https://connect.mayoclinic.org/comment/1274822/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2025

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