Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

958 total results

Comment

My sister is still in hospital being treated for inflammation of pericardium, complication after right lung...

https://connect.mayoclinic.org/comment/1024416/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2024

Comment

Also be aware of chest pain and shortness of breath. I thought I was having a...

https://connect.mayoclinic.org/comment/1328192/

Discussion: Blood Clots, DVT and Neuroendocrine Cancer - Be aware.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2025

Comment

Hi ggiinnaa I am not a lung net person but I know as we get older,...

https://connect.mayoclinic.org/comment/1265572/

Discussion: Could a mass on adrenal gland be linked to my carcinoid lung tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2025

Comment

What type of NETs do you have? Are you currently taking the shots and having issues?...

https://connect.mayoclinic.org/comment/1417947/

Discussion: Octreotide shots

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2025

Comment

Hi @josey1 I responded to your other post as I have DIPNECH, lung NETs and breast...

https://connect.mayoclinic.org/comment/906759/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Comment

I also just had a copper scan August 2022 they found a hemangioma in my 5th...

https://connect.mayoclinic.org/comment/750923/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2022

Comment

I've had 3 neuroendocrine tumors(1 calcified,avocado sized)for 50 years. At 75 and opting out to keep...

https://connect.mayoclinic.org/comment/896104/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Comment

@revcindy- I'm glad that you found us. I'm so sorry that after all this time you...

https://connect.mayoclinic.org/comment/232844/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 24, 2019

Comment

Hello @gesmone1 and welcome to the NET support group on Mayo Connect. I'm glad that you...

https://connect.mayoclinic.org/comment/939679/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Comment

Kim has had a rocky first week after surgery on March 1st. Went home from hospital...

https://connect.mayoclinic.org/comment/824732/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Follow

9912

1 minute ago

Pancreatic Cancer

Follow

3504

9 minutes ago

Adolescent & Young Adult (AYA) Cancer

Follow

860

24 minutes ago

Follow

8069

25 minutes ago

Cancer: Managing Symptoms

Follow

5547

25 minutes ago