Neuroendocrine Tumors (NETs) Support Group

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Comment

I also was 48 when first diagnosed with NETs. My primary care Dr. totally missed the...

https://connect.mayoclinic.org/comment/277071/

Discussion: I am not ok with this at all

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2019

Comment

Diagnosed with NELM 2017 with unknown primary, well differentiated grade 2 in liver and abdominal area....

https://connect.mayoclinic.org/comment/998435/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

Comment

Diazoxide is only med prescribed to help hypoglycemia caused by endocrine tumors. If cornstarch worked they...

https://connect.mayoclinic.org/comment/934254/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Comment

Hi Sandi You are a blessed person 19 year. Wow!!!! I was on lanreotide and had...

https://connect.mayoclinic.org/comment/746905/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2022

Comment

Kim, I remember. Thanks for asking. I stopped taking temozolomide about 5 months ago and now...

https://connect.mayoclinic.org/comment/1038499/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Comment

Sorry to read about your circumstance. My NET is a Insulinoma, pancreas to liver, also too...

https://connect.mayoclinic.org/comment/874444/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Comment

How old is your wife? I'm 55yr old Male and I had a SI resection, primary...

https://connect.mayoclinic.org/comment/994044/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2024

Comment

My pancreas had an 8x6cm tumor. My liver also had innumerable lesions with the largest being...

https://connect.mayoclinic.org/comment/1254696/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2025

Comment

Had appts at Mayo this week and CT scan shows growth in multiple liver tumors. Switching...

https://connect.mayoclinic.org/comment/771583/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2022

Comment

Thanks for your reply. Have your doctors ever run any tests to determine if pancreas or...

https://connect.mayoclinic.org/comment/1207772/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2025

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