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Discussions (38)
Comments (377)
Comment
My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...
https://connect.mayoclinic.org/comment/898391/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
Comment
Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...
https://connect.mayoclinic.org/comment/1194306/
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Discussion:
Is there anything I can do for the bloating?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 20, 2024
Comment
But what does the octreotide do to you? From what I've found when web searching, it...
https://connect.mayoclinic.org/comment/1254930/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 10 3:27pm
Comment
Im sorry to hear you are going through that. It is actually my brother. He had...
https://connect.mayoclinic.org/comment/1325183/
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Discussion:
Anyone have lung NETs lining your pleura?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 11 5:16pm
Comment
I was diagnosed with nets in April of 2020. The nets were in my right lung....
https://connect.mayoclinic.org/comment/1269123/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29 7:04am
Comment
That’s great it improved your allergies! In my allergy testing, it looked like I was allergic...
https://connect.mayoclinic.org/comment/1330268/
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Discussion:
DIPNCEH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 11:53pm
Comment
Hi Larenn, May I ask how large your lung tumor and subcutaneous nodule were? I have...
https://connect.mayoclinic.org/comment/825153/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 12, 2023
Comment
@aliatl Yes they gived same all three medicines, 6 times x 3 days. After 2. chemotherapy...
https://connect.mayoclinic.org/comment/823442/
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Discussion:
NET lung with Liver Metastasis (stage 4)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 9, 2023
Comment
Hi @shella, I wanted to make sure you saw the helpful post from @merpreb. I have...
https://connect.mayoclinic.org/comment/815207/
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Discussion:
What tumor size is typical for removing part of the lung?
Support Group:
Lung Cancer
Posted: Feb 21, 2023
Comment
@tufan HI Tufan, I'm sorry to hear that. I hope soon you start getting good treatment...
https://connect.mayoclinic.org/comment/803389/
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Discussion:
Neuroendocrine Lung stage 4B with metastasis in liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 29, 2023
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