Neuroendocrine Tumors (NETs) Support Group

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Comment

Having a high count on Chromogranin is indicative of a Neuroendocrine tumor, regardless of whether or...

https://connect.mayoclinic.org/comment/1232800/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2025

Comment

I feel for you with the difficult to control blood sugars. For a time I was...

https://connect.mayoclinic.org/comment/838750/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Comment

I had 3 NET tumors in stomach (mayor curve). The treatment was resection and after that...

https://connect.mayoclinic.org/comment/802563/

Discussion: Neck and face red flushing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Comment

Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX,...

https://connect.mayoclinic.org/comment/796241/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2023

Comment

Since you have 5 lung NETs, read up on DIPNECH which is something some of us...

https://connect.mayoclinic.org/comment/1359327/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29, 2025

Comment

I’ve gone through four embolization procedures on my liver and I’m down to my last one...

https://connect.mayoclinic.org/comment/1047618/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2024

Comment

Slow growing is good! How large is the largest tumor? It makes me wonder if you...

https://connect.mayoclinic.org/comment/1081836/

Discussion: Multiple bilateral neuroendocrine lung tumors grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2024

Comment

@kdubbs DIPNECH sounds much scarier than it is. Sloooowww growing. You’ll be around for a long...

https://connect.mayoclinic.org/comment/1394217/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2025

Comment

Hi! I have been receiving Octreotide injections once a month for about a year now. For...

https://connect.mayoclinic.org/comment/1196315/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

Comment

Hoping your wife is continuing to do well. My husband has struggled a bit coming back...

https://connect.mayoclinic.org/comment/1125881/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 18, 2024

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