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Discussions (47)
Comments (536)
Comment
Hi Jane @gram26 I would agree with Theresa to check out all the DIPNECH comments on...
https://connect.mayoclinic.org/comment/882190/
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Discussion:
Should I see a NET specialist?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 21, 2023
Comment
My Husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid that spread to liver, lymph...
https://connect.mayoclinic.org/comment/1048688/
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Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 10, 2024
Comment
Hi @tatteesmom3 , I see a thoracic oncologist who is part of a NETS team at...
https://connect.mayoclinic.org/comment/854004/
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Discussion:
What do I need to know about NETS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 3, 2023
Comment
First of all, I'm sorry about your challenges, but it sounded like you have a positive...
https://connect.mayoclinic.org/comment/797186/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 15, 2023
Comment
My husband took Octreotide shots for about 18 months & some months after the shot he...
https://connect.mayoclinic.org/comment/1269503/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 29 3:06pm
Comment
Has anyone been advised to use a celiac plexus nerve block for back and upper abdominal...
https://connect.mayoclinic.org/comment/1019957/
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Discussion:
Anyone had plexus nerve block for cancer pain?
Support Group:
Pancreatic Cancer
Posted: Feb 21, 2024
Comment
I was diagnosed in 2023, this was all found on accident as I was involved in...
https://connect.mayoclinic.org/comment/1102518/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 9, 2024
Comment
I had a modified Whipple in 2015 for insulinomas x 2. 3 months later had more...
https://connect.mayoclinic.org/comment/1267600/
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Discussion:
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 26 7:37pm
Comment
Sophiarose, the radiologist and doctors want most of the Octreotide or Lanriotide out of your system...
https://connect.mayoclinic.org/comment/1169494/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 7, 2024
Comment
davisnrn: I read your post I am going to be 70 and I am in my...
https://connect.mayoclinic.org/comment/1017749/
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Discussion:
Statistics on progression free survival while on SSA / Lanreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 18, 2024
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