Neuroendocrine Tumors (NETs) Support Group

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Comment

@doonman: Lanreotide 210mg is a standard 28 day injection for NET patients; it is touted to...

https://connect.mayoclinic.org/comment/1503245/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11 1:05pm

Comment

The tumors are grade 2 Stage 4 I had bland embolization No radiation I am now...

https://connect.mayoclinic.org/comment/978230/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2023

Comment

All forms of nets are still pretty rare but more cases are being diagnosed all the...

https://connect.mayoclinic.org/comment/1296399/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2025

Comment

I’m new to this forum, after recently being diagnosed and getting over that shock, next was...

https://connect.mayoclinic.org/comment/820238/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2023

Comment

@doonman , Lanreotide does not shrink tumors, just stabilize the disease. It is the " tool...

https://connect.mayoclinic.org/comment/1448676/

Discussion: Anyone had positive results from Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 28, 2025

Comment

I don't know anything about Panama, but there are generic versions of Lanreotide that might cost...

https://connect.mayoclinic.org/comment/1415200/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2025

Comment

I had 4 prrt sessions. All tumors shrank substantially making surgery more feasible. They continued me...

https://connect.mayoclinic.org/comment/1489283/

Discussion: Finished PRRT and I'm wondering about others' results.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 8:54am

Comment

I have been getting Lanreotide injections every 4 weeks since July 2019. I responded well, with...

https://connect.mayoclinic.org/comment/791955/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2023

Comment

Have you had a PET scan by chance? Just wondering how you were diagnosed? Your surgical...

https://connect.mayoclinic.org/comment/1228952/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3, 2025

Comment

My tumors are not in my lungs but in response to the flushing, I experienced flushing...

https://connect.mayoclinic.org/comment/1107435/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2024

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