Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
2,116 total results
Discussion
Treatment for GI NET with liver mets not working: Options?
had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...
Last active: Mar 25, 2024
Discussion
Liver mets mistaken as hemangioma or harmatoma on MRI
Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...
Last active: Sep 25, 2022
Discussion
Lesions, Cystic liver mets, vs Tumors
Could someone please explain the difference between lesions, cystic lesions and tumors. I have gone to multiple websites to clarify my best friend's last MRI....
Last active: Mar 2, 2023
Discussion
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
Last active: Apr 20, 2024
Discussion
Lost with no confirmation of NETs origin: Innumerable liver lesions
Hi, my dad-active 63 year old kept complaining of boating and dull stomach pain. I am a nurse but am not very familiar with oncology...
Last active: Mar 31, 2023
Discussion
Bland Embolization in Liver: Fatigue post-op is debilitating
About one month ago I received bland embolization for NETs in my liver. The fatigue post op has been almost debilitating. I’m looking for anyone...
Last active: Sep 21, 2024
Discussion
NET on liver: Question about treatments when no symptoms
Looks like this is the place to ask if anyone has been thru this.My mother was diognosed in March with a 5cm low grade NET...
Last active: Oct 31, 2024
Discussion
Has anyone out there tried Histotripsy for tumors in the liver?
Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance...
Support Group: Liver Cancer
Last active: Mar 6 11:12am
Discussion
Neuroendocrine Lung stage 4B with metastasis in liver
I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...
Last active: Feb 7, 2023
Discussion
Is MRI imaging on same machine for NETs + Liver metastases important?
I have been told by several drs and read that it is important to have your images taken on the same machine for the quarterly,...
Last active: May 20 12:51pm