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Neuroendocrine Tumors (NETs) Support Group

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Discussion
New NET in liver and small intestine
‘Im a 74 yr old woman. A NET tumor in my small intestine was removed about 18 months ago. This month a CT found two...
Last active: Nov 12, 2025
Discussion
New to the group and cancer journey: Liver NETs
I was recently diagnosed with stage 4 neuroendocrine tumors on my liver.I went to the Dr. for abdominal pain and after cat scans and a...
Last active: May 10 9:47am
Discussion
Anyone heard about Histotripsy for liver NETs?
Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.
Last active: Feb 27, 2024
Discussion
Metastasis to the Liver Caudate Region (Segment 1)
In reference to my wife: Recent C/T of abdomen and pelvis showed "increased hypervascularity in the haptic metastasis in the caudate". Initial discovery Background: NET...
Last active: Jul 16, 2025
Discussion
Primary Small Bowel NETS, Liver Mets
I’ve included a photo of my liver Mets in case others are interested in what it actually looks like. Photo was taken by NETS surgeon...
Last active: Dec 23, 2025
Discussion
NET in jejunum spread to liver: Treatment options?
Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...
Last active: Apr 19, 2025
Discussion
How to Deal with Coughing due to Liver Mets?
I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...
Last active: Jun 5, 2023
Discussion
What's the best way to detect liver metastases?
Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...
Last active: Feb 5, 2023
Discussion
Anyone had PRRT treatment for liver metastasis NETS?
What are people's experiences with PRRT or peptide receptor radionuclide therapy for neuroendocrine tumors of the liver?
Last active: Apr 18 6:46am
Discussion
NETs with Liver metastasis: starting lanreotide injections
Had what I thought was a bad stomach bug, turned out to be a neoindicrine tumor blocking my small intestine with lymph node involvement. Had...
Last active: Nov 1, 2025