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Public Support Group 622 total results
Discussion
Advice for Preparations and Expectations on starting PRRT?
https://connect.mayoclinic.org/discussion/advice-for-preparations-and-expectations-on-starting-prrt/
I am currently preparing to begin Lutathera at Mayo in Jacksonville after showing progression while on Clinical trial CAM2029 octreotide. Fully terrorized as what to...
Discussion
Experience w liver metastasis & new small tumor peritoneal cavity
I have metastatic neuroendocrine tumors in the liver with no known origin diagnosed in Sept 2024 grade 2 KI-67 6-8% well differentiated non functioning. Been...
Discussion
High or Fluctuating Chromogranin A Level: What does it mean?
I’m not sure if I’m in the right place or not but I started this conversation here bc my Levels were so high. Has anyone...
Discussion
NET's and Dental Work
I have read *** that a carcinoid crisis could be triggered during a dental procedure using anesthetics. I have upcoming dental work required. (I am...
Discussion
Metastasis to the Liver Caudate Region (Segment 1)
In reference to my wife: Recent C/T of abdomen and pelvis showed "increased hypervascularity in the haptic metastasis in the caudate". Initial discovery Background: NET...
Comment
@pavlina60 Thank you .wish u a healthy life. My sister has completed her Etoposide and Cisplatin...
Discussion
How rare is it???
I have stomach nets, sibo (small intestinal bacterial overgrowth), Autoimmune Atrophic gastritis and Stomach nets. I’m currently on the wait and watch protocol for the...
Comment
Hi, interesting. What is a octreotide scan then? I read that it helps find them...well, I'll...
Comment
I’m so glad you posted this. I receive octreotide injections with my PRRT treatments. I had...
Discussion
Experience w/ watch and wait approach for metastatic liver tumor
I have grade 2, stage IV neuroendocrine tumor in the liver, KI-67 6-8%. 4x3.1 cm mass plus additional small tumors. Differentiated and non-functioning. No origin...
Discussion
PRRT Theranostics Update
PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the Radiologists. After reviewing both of my surgery path reports...
Discussion
Recurrence with Metastasis
Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...
Discussion
Interested in your experience with treatments of PRRT vs surgery
I am grade 2 metastatic to the liver of unknown origin. diagnosed in Oct 2024. Dr suspects it originated in the GI Track. Octreotide has...
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