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Neuroendocrine Tumors (NETs) Support Group

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Discussion
NET in jejunum spread to liver: Treatment options?
Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...
Last active: Apr 19, 2025
Discussion
Anyone heard about Histotripsy for liver NETs?
Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.
Last active: Feb 27, 2024
Discussion
Liver Mets treatment options for carcinoid NET
Hello, I was diagnosed with liver mets from ileocecal primary. I am scheduled for primary site removal next month, but the liver is still undecided....
Last active: Apr 18 10:36am
Discussion
How to Deal with Coughing due to Liver Mets?
I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...
Last active: Jun 5, 2023
Discussion
What's the best way to detect liver metastases?
Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...
Last active: Feb 5, 2023
Discussion
NETs with Liver metastasis: starting lanreotide injections
Had what I thought was a bad stomach bug, turned out to be a neoindicrine tumor blocking my small intestine with lymph node involvement. Had...
Last active: Nov 1, 2025
Discussion
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
Last active: Apr 20, 2024
Discussion
Liver mets mistaken as hemangioma or harmatoma on MRI
Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...
Last active: Sep 25, 2022
Discussion
Lesions, Cystic liver mets, vs Tumors
Could someone please explain the difference between lesions, cystic lesions and tumors. I have gone to multiple websites to clarify my best friend's last MRI....
Last active: Mar 2, 2023
Discussion
New to the group and cancer journey: Liver NETs
I was recently diagnosed with stage 4 neuroendocrine tumors on my liver.I went to the Dr. for abdominal pain and after cat scans and a...
Last active: May 10 9:47am