Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
1,924 total results
Discussion
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
Last active: Apr 20, 2024
Discussion
Lost with no confirmation of NETs origin: Innumerable liver lesions
Hi, my dad-active 63 year old kept complaining of boating and dull stomach pain. I am a nurse but am not very familiar with oncology...
Last active: Mar 31, 2023
Discussion
Bland Embolization in Liver: Fatigue post-op is debilitating
About one month ago I received bland embolization for NETs in my liver. The fatigue post op has been almost debilitating. I’m looking for anyone...
Last active: Sep 21, 2024
Discussion
NET on liver: Question about treatments when no symptoms
Looks like this is the place to ask if anyone has been thru this.My mother was diognosed in March with a 5cm low grade NET...
Last active: Oct 31, 2024
Discussion
Has anyone out there tried Histotripsy for tumors in the liver?
Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance...
Support Group: Liver Cancer
Last active: Mar 6 11:12am
Discussion
Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Hi everyone. I am new to the group and wondered what kinds of symptoms others with Pnet go through. I was diagnosed just under a...
Last active: Mar 17 9:32am
Discussion
Liver function (birirubin, globulin, glucose, iron) and Octreotide
Started Octreotide shot in Dec. Labs show Bilirubin going from .7 to 1.1 to 1.5 in three months, iron is 25 and % saturation is...
Last active: Mar 25 8:47pm
Discussion
Neuroendocrine Lung stage 4B with metastasis in liver
I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...
Last active: Feb 7, 2023
Discussion
Pancreatic Cancer: Anyone have liver metastasis after Whipple?
Looking to speak with others who have had a successful Whipple procedure, but cancer metastasized to your liver
Last active: Mar 29 4:27pm
Discussion
How does Alcohol use affect Liver NET?
How much is too much? How does it effect Liver NET?
Last active: Feb 10 3:55am