Neuroendocrine Tumors (NETs) Support Group

I have been doing injection for a year now but as of a few months ago after the injection I am feeling very sluggish, and...

I've had only 3 Lanreotide injections for my PNETS and I'm experiencing muscle pain/weakness. Has anyone else experienced this side effect and was there a...

Anyone have problems with elevated blood pressure while on Lanreotide?

I was given Lanreotide injection to fast last month. I had horrible side effects from it I ended up in emergency. Sick all month. Has...

I was diagnosed late February 2025 by liver lesion biopsy with neuroendocrine grade 2, well differentiated. Ga68 Dotatate Pet scan end of March confirmed pancreas...

Maybe my story helps somebody. I've had well differentiated Nets for a while now. A review early last year of a 2019 CT confirmed mesenteric...

I have primary NET in the small intestine, spread to stomach wall and liver. I just got my 3rd monthly Somatuline (Lanreotide) injection 4/12. About...

Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec...

I was just scheduled for a PET scan 1 week following my last Ipsen (long lasting) lanreotide injection. Separately, I have read that the scan...

What are the latest developments in Zanzalintinib (311) with LANREOTIDE ACETATE (4-week cycle) in treating pNET high grade 3 metastatic in liver for over 2...