Neuroendocrine Tumors (NETs) Support Group

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Comment

I’ll speak to 3 & 4. My wife with NETs (ileum), 50 METS to liver has...

https://connect.mayoclinic.org/comment/134661/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2018

Comment

I wish I knew more of the symptoms you face other than feeling bad. Are you...

https://connect.mayoclinic.org/comment/1446800/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 25, 2025

Comment

Hi, I too have NETs that were discovered in my ileum after being in the ER...

https://connect.mayoclinic.org/comment/777826/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2022

Comment

Hi, I had 1.5m of my ileum removed 2022 due to nets. Was in hospital for...

https://connect.mayoclinic.org/comment/1273504/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2025

Comment

I like the idea of no treatment plan. Do I really want to get a work-up...

https://connect.mayoclinic.org/comment/1484112/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 4:15pm

Comment

@rose2522 i had constant GERD for years many endoscopies and testing showed nothing. 2015 had cyst...

https://connect.mayoclinic.org/comment/1441250/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2025

Comment

i actually feel good since surgery. I have had check up every 6 months since surgery....

https://connect.mayoclinic.org/comment/1065049/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2024

Comment

I also had multiple small lesions in my liver and a few larger ones. I decided...

https://connect.mayoclinic.org/comment/813447/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

@zacharycat I was allergic to the treatments back in 2005 but luckily I had a very...

https://connect.mayoclinic.org/comment/1530413/

Discussion: Lutathera treatments

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

Comment

Thanks for sharing, my experience was very similar (see below) additionally they removed the right side...

https://connect.mayoclinic.org/comment/1236619/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2025

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