Neuroendocrine Tumors (NETs) Support Group

Cat Scan shows 4x3 cm mass in liver and lesions in other lobe. Biopsy results neuroendocrine liver tumor. KI-67 6-8%. Synaptophysin and CK Cam positive....

I have been receiving treatment for carcinoid syndrome for 3 years. It is believed tumor is in small intestine. Doctors waffle back and forth about...

Newly diagnosed with à neuroendocrine tumor Gr1 K167 under 1%. Was removed during a colonoscopy as it presented as a polyp, but the pathology report...

Maybe this is rant post, but my mom aged 56 has been having diarrhoea and flushing since past 7 months and I've seen three gastroenterologists,...

I had chromograinin A test done which was very high and 5-HIAA been waiting for results for over 2 weeks, I have a lot of...

Hello All! I have had flushing for several years with alcohol, stress, emotions, heat/exercise, and some other foods. I also have cyclical diarrhea. In the...

My twin sister had an incidental finiding of atypical pulmonory carcinoid 2 weeks ago. The following are reports of her diagnosis. Se is due to...

I was diagnosed in ‘21 (51 y/o) with SB net and metastatic tumor in the mesentery lymph nodes. All successfully resected. The metastasis in mesentery...

Context: I've known about my NETs diagnosis for less than 2 weeks. A very small NET was discovered during a routine colon cancer screening colonoscopy;...