Neuroendocrine Tumors (NETs) Support Group

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@sakota- Absolutely Joan. It does help for sure.I have to wait until early December for my...

https://connect.mayoclinic.org/comment/233064/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 18, 2019

Comment

I have been just diagnosed with a bronchial carcinoid. I thought my only option was surgical...

https://connect.mayoclinic.org/comment/1056379/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

Comment

I guess this is the end of the run on PRRT. I have lung nets with...

https://connect.mayoclinic.org/comment/257060/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2021

Comment

Recent diagnosed with lung nodule on lower left lobe 9mm first opinion says watch / wait...

https://connect.mayoclinic.org/comment/831587/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

@nannybb ya my pain seems to be my ribs also when I touch they hurt or...

https://connect.mayoclinic.org/comment/1447636/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2025

Comment

@tomrennie Good job finding a local NET surgeon for her! Great that our conversation helped someone...

https://connect.mayoclinic.org/comment/1432521/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Comment

I have lung nets also. Had sbrt radiation for 2 of them and started sandostatin injections...

https://connect.mayoclinic.org/comment/939674/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Comment

@nannybb I’ve read all of your responses, but I did not see a previous one regarding...

https://connect.mayoclinic.org/comment/1431871/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2025

Comment

SBRT, 5 Treatments total. See www.redjournal.org “Early-Stage Primary Lung Neuroendocrine Tumors Treated With Stereotactic Body Radiation...

https://connect.mayoclinic.org/comment/941923/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2023

Comment

Know that surgery is considered the “gold standard” treatment for lung NETs. You want it out...

https://connect.mayoclinic.org/comment/899337/

Discussion: Newly diagnosed High-Grade Neuroendocrine Lung Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

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