Neuroendocrine Tumors (NETs) Support Group

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Comment

@hopeful33250 In the Spring of 2023 I had issues with bronchitis which initially seemed to improve...

https://connect.mayoclinic.org/comment/1450946/

Discussion: Has anyone been diagnosed with neuroendocrine carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 1, 2025

Comment

I have a Lung Net that is well defined, grade one. It is in my middle...

https://connect.mayoclinic.org/comment/941988/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2023

Comment

Hello @cercare and welcome to the NETs support group on Mayo Connect. I can certainly understand...

https://connect.mayoclinic.org/comment/1463885/

Discussion: 1 yr 9 months post upper left lobectomy, shortness of breath

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 19, 2025

Comment

A year ago I had a similar event except my 6.9cm tumor was in my left...

https://connect.mayoclinic.org/comment/1237625/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

Comment

@tomrennie Typical and atypical grading only applies to lung NETs. I feel like GI and lung...

https://connect.mayoclinic.org/comment/1430632/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2025

Comment

Hi @gmapam My lung NETS team happens to be at UCLA. I also had my NETSPOT...

https://connect.mayoclinic.org/comment/884379/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

@nodunk- I did not mean to sound flippant about your choice of self-medicating. I am sorry...

https://connect.mayoclinic.org/comment/742576/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2022

Comment

I’m 68 yr old woman. I had a lot of tests done before surgery and they...

https://connect.mayoclinic.org/comment/1237853/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

Comment

My dogs are my very dearest friends and companions. Wouldn’t have made it as well as...

https://connect.mayoclinic.org/comment/233079/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 20, 2019

Comment

I will say a prayer for you! I am wondering if by any chance your Dr....

https://connect.mayoclinic.org/comment/747813/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10, 2022

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