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Discussions (47)
Comments (536)
Comment
Yes … taking ones weight off of the leg/hip being injected definitely helps! Having had many...
https://connect.mayoclinic.org/comment/882672/
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Discussion:
Advice for making monthly injections more tolerable
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 21, 2023
Comment
Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...
https://connect.mayoclinic.org/comment/1070950/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 19, 2024
Comment
The dentist called my oncologist and he said absolutely no epinephrine so I need to have...
https://connect.mayoclinic.org/comment/1322979/
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Discussion:
Root canal without Epinephrine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 8 12:12pm
Comment
I'm a NETs patient on monthly Lanreotide. I just had a tooth pulled using Lidocaine at...
https://connect.mayoclinic.org/comment/1322071/
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Discussion:
Root canal without Epinephrine
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 7 7:08am
Comment
Hi! I have been receiving Octreotide injections once a month for about a year now. For...
https://connect.mayoclinic.org/comment/1196315/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 24, 2024
Comment
Good plan to see a NETs team. DIPNECH is rare. Latest data I’ve read is 300...
https://connect.mayoclinic.org/comment/1108887/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
Comment
Hi @ocean3131 I also have DIPNECH and you can read my other posts for more details...
https://connect.mayoclinic.org/comment/987810/
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Discussion:
Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 28, 2023
Comment
I don’t know what to say. Mine is an Insulinoma, Pancreas and spread to my Liver....
https://connect.mayoclinic.org/comment/866991/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26, 2023
Comment
In adittion...... Could be usefull to know the complete biopsy description: Ki, Grade, Functional or not,...
https://connect.mayoclinic.org/comment/1292233/
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Discussion:
Anyone else have Gastric NET? Going to Mayo
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 28 7:25pm
Comment
So weird to hear of someone else having Autoimmune Atrophic Gastritis and nets in the stomach....
https://connect.mayoclinic.org/comment/1292214/
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Discussion:
Anyone have a stomach NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 28 6:32pm
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