Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

794 total results

Comment

Since you have 5 lung NETs, read up on DIPNECH which is something some of us...

https://connect.mayoclinic.org/comment/1359327/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 29 1:55pm

Comment

Interesting. I get all that. And totally understand waiting to get it checked because it's so...

https://connect.mayoclinic.org/comment/1357885/

Discussion: A couple of questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 5:17pm

Comment

I too have a Lung NETs that has metastasized to my lymph nodes. My understanding is...

https://connect.mayoclinic.org/comment/939932/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

Comment

@skkirby Hello Sherry, Sharing your experience here on Mayo Connect is encouraging for many who are...

https://connect.mayoclinic.org/comment/806376/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2023

Comment

Hello @ghassan It has been awhile since you last posted and I was wondering how you...

https://connect.mayoclinic.org/comment/134279/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2018

Comment

Welcome, @lchaney1951. I moved your question to the Neuroendocrine Tumors (NETs) support group here: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/ where...

https://connect.mayoclinic.org/comment/1022343/

Discussion: Carcinoid tumor right middle lobe.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Comment

Your physicians need to communicate among themselves to provide a coherent and consistent message to you....

https://connect.mayoclinic.org/comment/284799/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 25, 2019

Comment

Hello @amd12, I'd like to join Colleen, @colleenyoung, in welcoming you to the NETs group at...

https://connect.mayoclinic.org/comment/657390/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2021

Comment

I was diagnosed with acinar cell carcinoma of the pancreas in December 2024 They discovered it...

https://connect.mayoclinic.org/comment/1313385/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 26 1:25pm

Comment

Hello @netnan, had left lung NET atypical carcinoid tumor. It was a little bigger - between...

https://connect.mayoclinic.org/comment/1106611/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2024

Digestive Health

Follow

16229

33 minutes ago

Pancreatic Cancer

Follow

3076

1 hour ago

Follow

7089

2 hours ago

Follow

1619

3 hours ago

Follow

8816

3 hours ago