Neuroendocrine Tumors (NETs) Support Group

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Comment

General question...have NETS. I'm both lungs. The GA-68 Pet/scan. Reference my liver SUV. # was very...

https://connect.mayoclinic.org/comment/1054473/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Comment

I too had 5 treatments of sbrt for 2 lung nets. I did not have any...

https://connect.mayoclinic.org/comment/942220/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 5, 2023

Comment

this is a question that doesn't pertain to lung cancer , just in case someone has...

https://connect.mayoclinic.org/comment/233090/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 23, 2019

Comment

Yes. Stage 3B inoperable large cell neuroendocrine lung cancer. Had concurrent radiation and chemo. Protocol dictated...

https://connect.mayoclinic.org/comment/1450492/

Discussion: Has anyone been diagnosed with neuroendocrine carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 30, 2025

Comment

I recently had my first appointment with DR Starr It is very important that he have...

https://connect.mayoclinic.org/comment/1483504/

Discussion: Tips about preparing for my second opinion appointment at Mayo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 4:29am

Comment

I have been on Everlimos for 12 weeks. A follow up CT done recently showed slight...

https://connect.mayoclinic.org/comment/1524872/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 7:07pm

Comment

I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for...

https://connect.mayoclinic.org/comment/1067737/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

Comment

I had a large one in my left lower lobe. Almost 2cm and they weren't sure...

https://connect.mayoclinic.org/comment/1318419/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2025

Comment

Hi @amd12 -- Are you still using this message board? Just wondering what the status of...

https://connect.mayoclinic.org/comment/867413/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

Comment

@mcbyron How was your experience with Dr. Liu? I’m impressed by him after watching many presentations....

https://connect.mayoclinic.org/comment/1142067/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2024

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