Neuroendocrine Tumors (NETs) Support Group

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Thanks for the update, @spinhead. I hope that you will post again after your Gallium Scan...

https://connect.mayoclinic.org/comment/940504/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Comment

Thank you I did Lanreotide had bad side effects had to stop I was ok on...

https://connect.mayoclinic.org/comment/830413/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

So sorry this has happened. I have had some Lanreotide injections that I thought were too...

https://connect.mayoclinic.org/comment/1403848/

Discussion: Lanreotide shot given too fast, any side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2025

Comment

We aren't doctors, but generally NET is slow growing in most cases, and the key is...

https://connect.mayoclinic.org/comment/859028/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Comment

Welcome to the NET site! Hope you find the group helpful and supportive. I don’t have...

https://connect.mayoclinic.org/comment/851281/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

No meds before Lanreotide. I have had yearly CAT scans. The annual scan this year showed...

https://connect.mayoclinic.org/comment/1171345/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Comment

Hi! I have been treated with Ipsen Lanredtide until 12/25. In January and February I have...

https://connect.mayoclinic.org/comment/1508457/

Discussion: Neuroendocrine Lanreotide (Advanz Pharma) Problems

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 8:54pm

Comment

@ teresa33250: Lanreotide 28 day injections- I have taken them monthly since 10/21. My main concern...

https://connect.mayoclinic.org/comment/1249827/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2025

Comment

Just to add on CAP/TEM, it in conjunction with Lanreotide injections, helped my wife reduce her...

https://connect.mayoclinic.org/comment/839791/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8, 2023

Comment

@mimighosh I'm curious as to how your husband is currently reacting to the Lanreotide injections and...

https://connect.mayoclinic.org/comment/1447741/

Discussion: PET Ga-68 Dodatate Scan & Octreotide LAR Injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2025

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