Neuroendocrine Tumors (NETs) Support Group

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Comment

@pete1962 Thanks for responding. I don’t remember your first post, if your diagnosis includes NET in...

https://connect.mayoclinic.org/comment/837367/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

Hello @riffieli Your concerns are understandable. I have had three surgeries for NETs in the upper...

https://connect.mayoclinic.org/comment/787667/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Comment

I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis....

https://connect.mayoclinic.org/comment/698009/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Comment

Hi Jon, I also have Gastrinoma PNET of Grade 1, Stage 1, well defined, functional tumor...

https://connect.mayoclinic.org/comment/1287366/

Discussion: Gastrinomas and Whipple procedure

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Comment

I had robotic assisted liver debunking 9/6/22. Doctor said would help with the hormones being produced...

https://connect.mayoclinic.org/comment/789486/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2022

Comment

Yes. After my second embolization too. Just hang in there. Your liver is fighting all the...

https://connect.mayoclinic.org/comment/888145/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2023

Comment

Please do they are a great team of NEC doctors they did my liver resection surgery...

https://connect.mayoclinic.org/comment/1329072/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

I just read this comment. Did you ever get surgery for additional Mets in your liver?...

https://connect.mayoclinic.org/comment/1198871/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Dec 28, 2024

Comment

Yes, it had already metastasized & was only determined to have been the point of origin...

https://connect.mayoclinic.org/comment/939544/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Comment

I too have pNET grade 2, stage 4 due to liver metastases, but have not heard...

https://connect.mayoclinic.org/comment/1062830/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

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