Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi there, that is the diagnosis, stage 4 with mets to liver, spine, and some lymph...

https://connect.mayoclinic.org/comment/1390993/

Discussion: Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 10 12:49pm

Comment

Good day, Yes, I think this is my case. Mine is 9mm and mean. I am...

https://connect.mayoclinic.org/comment/1350762/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 7:03am

Comment

I was diagnosed with neuroendocrine metastic to the liver and 1 lymph node with pancreatic primary...

https://connect.mayoclinic.org/comment/881040/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

You may find this recent study helpful: https://pubmed.ncbi.nlm.nih.gov/36260828/ My wife has a large grade 2 pancreatic...

https://connect.mayoclinic.org/comment/933065/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Comment

I was diagnosed 5 yrs ago. It has metasticised to my liver and bones and spine/...

https://connect.mayoclinic.org/comment/929034/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2023

Comment

@sturns Are the numerous tumors in your liver and lymph glands related to the pituitary tumor?...

https://connect.mayoclinic.org/comment/780276/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

Comment

This was very interesting. My SIL has NET in liver (started in pancreas). She is doctoring...

https://connect.mayoclinic.org/comment/761053/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2022

Comment

Hi there Vinnie, I was recently diagnosed with the same, metastasized to liver. Did you have...

https://connect.mayoclinic.org/comment/903584/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

Comment

I have been on Lanreotide injections since March 2023. I have Stage 4 pNET with liver...

https://connect.mayoclinic.org/comment/899254/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Thank you for your post. I have small bowel primary NETs with liver met only diagnosed...

https://connect.mayoclinic.org/comment/786233/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

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