Neuroendocrine Tumors (NETs) Support Group

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Comment

@ahtaylor I would agree that you are blessed to be at Mayo and have such good...

https://connect.mayoclinic.org/comment/843301/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

Comment

I don't believe I have a team. Only symptoms are inconsistent bm's and some slight abdominal...

https://connect.mayoclinic.org/comment/1035653/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 8:54am

Comment

The first MR after 3-months on Afinitor 10 mg daily showed stability to slightly improved liver...

https://connect.mayoclinic.org/comment/182422/

Discussion: PRRT has been approved by the FDA Jan 26, 2018, as expected

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 1, 2018

Comment

Yes monthly Somatuline Depot until further notice. Quarterly MRI to track the 1.7cm NET in my...

https://connect.mayoclinic.org/comment/894429/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2023

Comment

So glad to find this! Had NET surgery small intestine and mesentery in 2015 after diagnosis...

https://connect.mayoclinic.org/comment/827137/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

Comment

He had two tumors on his pancreas so they removed his pancreas in 2018. It has...

https://connect.mayoclinic.org/comment/292375/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2020

Comment

I am a patient of Dr Starr's at Mayo Clinic Jacksonville. My NETS were ileum primary...

https://connect.mayoclinic.org/comment/876912/

Discussion: Where can I find a carcinoid syndrome specialist in Florida?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

Hi. Glad to have friends on the subject. Just had surgery-ilioectemy, lymph nodes were cancerous. New...

https://connect.mayoclinic.org/comment/817446/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

Comment

Hello Theresa. Can you tell me how serious a descending colon NET that has metastasized to...

https://connect.mayoclinic.org/comment/792586/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

Comment

Small intestine surgery in 1998, liver surgery in 2016, PRRT beginning this year. Two treatments, two...

https://connect.mayoclinic.org/comment/728930/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2022

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