Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi @ahtaylor Good to hear that your liver panels have been normal, that seems to be...

https://connect.mayoclinic.org/comment/829501/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of...

https://connect.mayoclinic.org/comment/292371/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2020

Comment

@meandmysis I was diagnosed with pancreatic cancer NETs, three 8cm tumors, that also have spread to...

https://connect.mayoclinic.org/comment/880674/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2023

Comment

MRI with contrast is the only way to go. I’m not sure the name of the...

https://connect.mayoclinic.org/comment/806725/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

Welcome, @estrellita1. I moved your question about neuroendocrine tumor spreading to the liver to this related...

https://connect.mayoclinic.org/comment/1317129/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2025

Comment

I am seeing Dr Daniel Halperin, a NETS specialist, who was at MD Anderson and is...

https://connect.mayoclinic.org/comment/1184890/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

Comment

Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Comment

Wow hats off to you on your journey what an experience you learned from and handled...

https://connect.mayoclinic.org/comment/821372/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2023

Comment

@pete1962 Thanks for responding. I don’t remember your first post, if your diagnosis includes NET in...

https://connect.mayoclinic.org/comment/837367/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Comment

Hello @riffieli Your concerns are understandable. I have had three surgeries for NETs in the upper...

https://connect.mayoclinic.org/comment/787667/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

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