Neuroendocrine Tumors (NETs) Support Group

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Comment

@t26 My wife had very similar surgery as you. Mass on pancreas was removed, tail of...

https://connect.mayoclinic.org/comment/834063/

Discussion: Anyone have surgery for metastatic PNET done in stages?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

Thank you and we feel the same way. Why not monitor at this point. She feels...

https://connect.mayoclinic.org/comment/1111437/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 7:54am

Comment

Of course I’m not a doctor, Kim’s case is after 9 months of chemo, she had...

https://connect.mayoclinic.org/comment/877443/

Discussion: Is it common to start on Lanreotide with no known tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

We are a year and half into our journey in living with NET. I can’t remember...

https://connect.mayoclinic.org/comment/932424/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Comment

My husband has had the insulinoma metastasized to liver since 2022. He also couldn’t do the...

https://connect.mayoclinic.org/comment/1144312/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20 5:34am

Comment

I do understand, @carcinoid. Your husband's weakend physical condition certainly might preempt him from some of...

https://connect.mayoclinic.org/comment/240133/

Discussion: Carcinoid cancer in intestine or NETs (Neuroendocrine Tumors)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2019

Comment

My brother was on a clinical trial using cabozantinib and nivolumab. Unfortunately, he had a lot...

https://connect.mayoclinic.org/comment/877316/

Discussion: Experiences with cabozantinib

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

Hello @willam, It has been a while since you last posted. How are you doing? Have...

https://connect.mayoclinic.org/comment/900512/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2023

Comment

Welcome, @teresea. You may be interested interested in this related discussion: - Bland embolization or transarterial...

https://connect.mayoclinic.org/comment/982346/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2023

Comment

The LACNET support group has a very interesting and supportive optimistic and helpful story the director...

https://connect.mayoclinic.org/comment/813998/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 19, 2023

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