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Discussions (69)
Comments (698)
Comment
I’ve been taking octreotide injections for over 3 years for lung NETs. Cause fatigue especially the...
https://connect.mayoclinic.org/comment/1098642/
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Discussion:
Anyone have side effects after Lanreotide injection?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 3, 2024
Comment
Ben, I read your post with interest. I was diagnosed with an inactive, "indolent" lung NET...
https://connect.mayoclinic.org/comment/782212/
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Discussion:
Pancreatic NF-NET stable since 2005 - surgery or not?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 7, 2022
Comment
Hello @woundedwarrior1969 and welcome to the NETs support group on Mayo Connect. I'm pleased that your...
https://connect.mayoclinic.org/comment/911926/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 12, 2023
Comment
Interesting. I am on my second cancer - fist lung five years ago, now liver. Now...
https://connect.mayoclinic.org/comment/232728/
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Discussion:
Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
Support Group:
Cancer: Managing Symptoms
Posted: Dec 8, 2018
Comment
Thank you yes I don't drink much at all just if I go out for a...
https://connect.mayoclinic.org/comment/1330028/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 3:11pm
Comment
@shella I had a similar experience. I went to the ER because I was coughing up...
https://connect.mayoclinic.org/comment/815215/
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Discussion:
What tumor size is typical for removing part of the lung?
Support Group:
Lung Cancer
Posted: Feb 21, 2023
Comment
Hello ya all. Had a rough time signing back in, but finally did the deed. Hope...
https://connect.mayoclinic.org/comment/134269/
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Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 11, 2018
Comment
It seems my first lobectomy 6 years ago was dipnech related nets, my second lobectomy in...
https://connect.mayoclinic.org/comment/1229468/
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Discussion:
Already on oxygen - diagnosed with DIPNECH: What happens next?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 4 2:53pm
Comment
My surgery is scheduled for the end of May which is further out than I had...
https://connect.mayoclinic.org/comment/1057584/
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Discussion:
Lung nodule could be slow growing carcinoid: Watch and wait is scary
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 26, 2024
Comment
I am currently having SBRT to radiate 2 carcinoid lung tumors that are 1.5 cm. They...
https://connect.mayoclinic.org/comment/838553/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 6, 2023
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