Neuroendocrine Tumors (NETs) Support Group

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Comment

That fact that you are already on Lanreotide should help in your recovery if you do...

https://connect.mayoclinic.org/comment/1271519/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2025

Comment

@jameshoch My husband was diagnosed in 2023 with grade 1, stage 4 NET. The primary tumor...

https://connect.mayoclinic.org/comment/1477609/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 3:32pm

Comment

My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver...

https://connect.mayoclinic.org/comment/802307/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Comment

I did lanreotide injections for about 3 years until it appeared that it was not as...

https://connect.mayoclinic.org/comment/1324845/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2025

Comment

Thank you and my best for you as well. At this point my team, I and...

https://connect.mayoclinic.org/comment/1279927/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Comment

I have been taking Octreotide LAR 30mg for 8 years. I also have muscle fatigue and...

https://connect.mayoclinic.org/comment/1506871/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 10:50pm

Comment

I have Neuroendocrine tumors (small intestine metastases to liver). My treatment for the last year is...

https://connect.mayoclinic.org/comment/1017449/

Discussion: I have 3 neuroendocrine tumors in left lung: Can I handle radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2024

Comment

This is a great news! Looks like Lanreotide is keeping the growth in check! I just...

https://connect.mayoclinic.org/comment/937359/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

I’m currently being treated with Lanreotide (2nd shot) at Mayo Jacksonville. I’ve had people tell me...

https://connect.mayoclinic.org/comment/827895/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 18, 2023

Comment

I had my 42nd lanreotide injection recently I’ve only had lethargy for a few days or...

https://connect.mayoclinic.org/comment/1196625/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

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