Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comment

The problem with blanket statements like your doctor told is that we all have different types...

https://connect.mayoclinic.org/comment/861136/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Comment

Hello @rushlakekathy and welcome to the NET discussion on Mayo Clinic Connect. I am glad that...

https://connect.mayoclinic.org/comment/814504/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

I appreciate Your follow up. Unfortunately I was disregarded by the oncologist, the only thing that...

https://connect.mayoclinic.org/comment/807767/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Comment

I have pNET grade stage4 with liver metastases. I have not noticed any swelling. I am...

https://connect.mayoclinic.org/comment/883583/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

I'm not a Dr, but I Play one on the internet. I think the answer is...

https://connect.mayoclinic.org/comment/808032/

Discussion: Can a second Neuroendocrine tumor appear or is it always metastatic?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

Comment

It’s a long list! Surgery to remove the primary Y90 to address a 50% tumor burden...

https://connect.mayoclinic.org/comment/1123233/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13 9:59pm

Comment

I'm am 56yrs old with liver NETs metastatic as well. Ki-67 is 4, well differentiated as...

https://connect.mayoclinic.org/comment/1167298/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3 11:58am

Comment

In reply to Blue Dane: I was very recenty diagnosed with 1 NET in my liver...

https://connect.mayoclinic.org/comment/813633/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Comment

@t26 My wife had very similar surgery as you. Mass on pancreas was removed, tail of...

https://connect.mayoclinic.org/comment/834063/

Discussion: Anyone have surgery for metastatic PNET done in stages?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

Thank you and we feel the same way. Why not monitor at this point. She feels...

https://connect.mayoclinic.org/comment/1111437/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 7:54am

Digestive Health

Follow

12623

53 seconds ago

Pancreatic Cancer

Follow

2233

7 minutes ago

Follow

5511

27 minutes ago

Visiting Mayo Clinic

Follow

4521

5 hours ago

Follow

1228

12 hours ago